This is all so confusing

Hi Nina,

I was Stage 1A, which meant the cancer had not gone through more than half the womb lining. Therefore I only needed the operation. It really depends how far the cancer has gone as to if you need radiotherapy, brachytherapy. chemotherapy. They won't know that exactly until the results of your operation are back.

Although I had keyhole surgery only, I was warned beforehand that she may have to switch to a cut. I didn't care as long as it was out!!!

xxxxxx

I was told something similar, they planned keyhole surgery but had to convert to full vertical incision part way through because the fibroids I also had were too big to remove using keyhole techniques. I was graded as 1 and staged as 1b, that is the cancer was contained within the wall of the womb, but was more than 50% through the wall. In my case that was upgraded post surgery from 1a to 1b  because the womb wall was distorted by the fibroids and therefore they couldn't tell just how far through the wall the cancer had spread. I was initially told surgery was all I needed, but the upgrade from stage 1a to 1b meant I was offered brachytherapy as a preventative to reduce the chances of a recurrence. I accepted and had 2 sessions. No further treatment was recommended after that for stage 1b. I think what happens after surgery depends on grade, stage and the particular policies of the hospital you are treated at.

Thank you. I’ve been told they found pre cancer merging into stage 1. Even that is confusing me having had a biopsy a few months before which was totally clear, and one before that which had shown something but not cancer??? I need to clarify that as at the time I was really struggling. I didn’t have anyone with me at the first time I was told something, or at the last time. Last time was simply because there wasn’t anyone available, first time person who came with me couldn’t find a space in the car park so I had to go to appointment on my own.

Hi Nina,

That sounds as if you have very early cancer. I forgot to mention that some early cancers are treated with hormone therapy - that's usually younger woman who are pre menopause. You may only need the operation, but don't bank on it !! Better to keep an open mind until after the operation and they have results in.

Parking at hospital really annoys my husband. He goes regularly to have a speech valve fitted. On one such occasion the clinic was late and he overran his parking time by 5 minutes. He got a ticket for £60! He went online to Martin Lewis and he said it was illegal to demand the money, so husband ignored the fine. We had another two letters demanding money, the amount going up, so husband then wrote them a letter(copied from Martin Lewis site) taking them to court over it. (he also got a letter from the clinic signed by a nurse) We heard no more!!!! 

Since then he parks the car nearby and walks into the hospital, so in effect he has done them out of at least £100. I do agree that it seems wrong to be cashing in on peoples illness. Could you park near, or catch a bus?   xxxxxx  

Thanks. Parking is always a problem . We had to go to numerous hospital appointments with my oldest which would have cost a small fortune had our then vicar not lived round the corner and have a big drive! Later we were able to park nearby for some appointments in a two hour parking space. But of course that was only for appointments we knew were not multiple bookings! Now sadly all surrounding roads are resident only or metered. That’s no good for any of my appointments as there is still a two hour maximum time! With the hospital you have to take a ticket on entry and pay before you leave-if you can find a space, then find a pay station in working order! 

Mostly my husband drops me and friend off and, if available, comes and gets us. I can walk back, but not allowed to do that after an anaesthetic!