Update on the clinical trial

Bless you......that is such encouraging news xxxx

Stay strong, sending you hugs 

Xx

wow, its sounding pretty positive Daloni, but gruelling. What a dramatic fall in CA125 levels but I admit I dont really know what that means, only that it sounds impressive. Keep up the good work lovely lady xxx

Thanks! CA125 stands for cancer antigen 125. It’s an inflammatory protein so we all produce it and the normal level is below 35. Some gynae cancers result in changes in the level of CA125 so doctors use it as a marker - if the CA125 is going up, the cancer is likely to be progressing; falling levels of CA125 indicate it’s shrinking. It’s not very precise - more of a red or green flag that things are going badly or well. 

So the drop by more than 80% since the start of the trial is very encouraging. 

You tend to hear more about CA125 in ovarian cancer. It’s not often a useful marker in womb cancer so doctors don’t routinely measure it. Uterine serous carcinoma is often more like an ovarian cancer at a molecular level. I was once told I had “ovarian cancer in the wrong place”. Go me. 

Xx

Hi Daloni,

That sounds very encouraging! 

Wishing you all the very best xxxxx

Wow , what a lady!! you are so brave doing all these treatments. SO very glad that this one seems so positive . take care   xxx

Hi Daloni

So pleased to hear the results of your new treatment. It is lovely to know that you are getting rewards for your hard efforts. Both you and your lovely girls deserve this so much.

I am doing much better following my on going problems after the radiotherapy. Had a scan 2 months ago which shows no evidence of disease which is amazing as it is 4 years to the day that I haemorrhaged and was told within 5 hours in A and E that it was cancer. It was then diagnosed as grade 3 serious and the journey began.

You were very instrumental in keeping me sane in those first few months and I think of you often. I was so sad to read of your family problems life just seems so unfair.

Sending you my love and respect

Lesley xx

Hi Lesley 

How lovely to hear from you - and how wonderful that you have now gone four years! I’m so happy for you. I do remember back to when you came onto the community and what an awful time you went through. So shocking. I’m so glad I was able to help. It feels like passing a baton down the line. I remember the support I got early on from a lady called Linda. It felt like I’d been in the dark and she had turned the light on. Then I was able to help you - and so on. 

I am doing fine now after the bomb went off in my life a year ago. I’m divorced, the house is in my name, I have my pensions and a good monthly settlement so we are fine financially. The girls and I do lots of fun things. We go to the theatre and spa days  and off on short trips between chemo cycles and treatments. I have lots of friends and a great family and so much love in my life and I’m thankful for that every minute of every day.

The  ex is getting married again week after next as he has a baby on the way. So much for his “new and exciting” life. I still think his actions were unforgivable - particularly towards the girls. But he will reap what he has sewn. My older daughter wants nothing to do with him. The younger one is less hard line but barely sees him. He has lost so much love from his life that really I have to wish him well and hope he can find a way to forgive himself. 

Lots of love to you dear Lesley 

xx

Hi daloni, wahoo I’m so happy to read your post, excellent news and well deserved, you have battled and never given up and still been there for everyone else, I admire you for all you have been  through and for how far you have come, you will always be my inspiration, I’m glad you and your girls have great times together, As for  your husband he is not worthy of you, and karma will get him, maybe one day he won’t be well and she will leave him like he did you, I’m not wishing it on him obviously, but I do believe in karma and at the moment it has his name on it lol, great news though hun, thank you for posting the update, take care my lovely xx

Hi Daloni,you are such an inspiration to us all,wonderful news that your new treatment is having good results.,so happy for you and your girls.

Xxx

.

This is fantastic news . The thing with modern medicine is that there is advances in medicine all the time and all these trails help both research and if they work to give hope to many cancer patients like yourself. I am truely delighted to hear this news, you've gone though a lot and not just your illness, yet you are a prime example why these trails are needed. Onward and upwards!

And a huge hug too