Awaiting treatment and scared!

Firstly sending you a big hug!

You have been through the mill haven't you sweetie x

Darling your friends and family are there for you and you are not a burden.

I went through a radical hysterectomy 10 weeks ago luckily mine hadn't spread beyond the womb so no further treatment needed thankfully. I can tell how scared you are and you are not alone in here. 

How old are you? It sounds like the doctors are on top of everything, I'm sorry I have no advice re radiotherapy etc but am always here to chat xxx

Hi Debs,

thank you for your reply and the hug!

everything seems to have happened so fast! I’m 38 with no children so it’s all a lot to take in. It’s  just my parents and I a handful of close friends but I find it hard talking with them because they have children, so it’s tricky. 

the checks they did at time of removal shows no further spread to lymph glands or surrounding areas, so I’m slightly confused as to why I’m being treated, but I understand it’s precautionary more than anything and I’d sooner be safe than sorry.

its all just so much, and I think I’ve been ignoring my emotions for so long that’s it’s all now coming to a head. It’s scary. I’ve read the leaflets and listened to all the info I can so I guess I’m just overwhelmed.

How are you finding the healing from your procedure? I’m healed up now but still tender. 

Xx

Awwww, 

Yes I'm doing well I think. I went back to work 2 weeks ago and have started back at the gym lightly.

I have just had my check up date through for the end of June x

Mine was originally a grade 2 stage 1a endometrial cancer after the biopsy they down graded it to grade 1 stage 1a.

I was lucky I found it so early, complete fluke tbh 

Where in the UK are you having treatment?

Did you have keyhole or laparotomy for yours? I had the latter, big ol’ scar but it’ll fade I suppose.

Sounds like you were very lucky with the biopsies, that’s good news. Can’t say I won’t miss the pain and periods, seems weird to think all that’s over for me now. Gingerly waiting for the signs of the menopause, already having hot flushes!

Im in Essex, will be treated at Southend hospital. A complete pain to park but has a good reputation.

I had keyhole surgery with the da vinci robotic surgery in Guildford.....I think parking is atrocious in all hospitals tbh . The morning I went into have surgery I had to walk into the hospital alone whilst my hubby went round and round and round the car park .

No sign of MENOPAUSE yet...I'm waiting lol I bought as can pre op and it's sitting there waiting! 

I don't miss periods what so ever.........back to normal almost....shops still shut in the bedroom dept, I'm too nervous. I'm sure that's a normal reaction lol

I found the NHS amazing at feeling with cancer, they acted quick and I couldn't ask for more support. 

X

My first surgery was planned keyhole but they had to cut open to remove the cyst because it was too big solid to be removed through incisions. 

Have to go 5 days a week for treatment, one of my biggest worries is the parking would you believe! Stupid I know, but the small things always seem to be a big deal for me at the moment, dreading it! A shame you’re hubby couldn’t walk in with you, you must have been very nervous but brave and he got there in the end.

the way workers I’ve had contact with so far have all been lovely, which is always good but it just makes me want to cry more when people are nice! Lol

Yes I understand your worried re parking but just leave plenty of time so that it doesn't stress you more than you are. 

Yes going into the hospital alone I remember shaking so bad but I had a slight cough and I was more worried they would turn me away. That detracted from the op some what.

What do you do for a living.....how long do you have to be off work?

I agree about parking. I'm due at Maidstone Hospital next week for radiotherapy and the thing stressing me out most is not the treatment but the parking !

I’ll be leaving plenty of time to allow for parking. Don’t know what time of day it will be yet, I’m hoping outside of visiting hours so it will be easier! Lol

i run a family business so thankfully work are fine with the time off I’ve been having. My job specifically is mainly desk based so I’ve been back part time this week to get back to some sort of normality. It will soon be rocked again though when treatment starts, 5 days a week for 5 weeks!

i stayed with my folks and off work for 4 weeks after each surgery. Still tender a little but I’m back home and driving again now so wanted to get the brain working again, there’s only so much Day time tv I can take! 

The parking is a worry every though there are hundreds of spaces, but there always seem to be queues! The last couple of appointments I hadn’t got a taxi there and back, but I can’t afford that 5 times a week for 5 weeks, it’ll break my bank! Lol

thyw should have a dedicated carpark for these things in my opinion, it takes away a stress that needn’t be there.