Clear discharge a year after hysterectomy...

FormerMember
FormerMember
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Hello! I am a bit more than a year after my surgery (I had only surgery - no radio- or chemotherapy). I have now had a clear discharge (a small amount of it, but visible on my underwear) for 3 or 4 consecutive days. I am a bit worried and I wonder if anyone else has had such a discharge. Today it suddenly flowed out of me when I was in a shop. 

I have my follow-up visit this month, but of course it would be great to hear something reassuring before the visit Slight smile

Joanna

  • FormerMember
    FormerMember

    Hi

    ooh it’s always a bit of a worry. I am not a nurse or a doctor so although my instinct is that this is nothing to worry about (no blood, no smell) I can’t really tell you. The best thing to do is call your clinical nurse specialist (if you have one) or put in a call to the nurses on the Macmillan helpline. The motto here is “if in doubt, check it out”. 

    Fingers crossed 

    xx

  • Hi Joanna , if I remember correctly , did it turn out that you had no cancer after all from your histology? Or am I getting you mixed up with another? To be honest I would feel less worried if this was the case, but as daloni said it’s best to get checked out as we can only guess and wonder, hopefully all is good Hun, let us know how you get on xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Hi Joanna , if I remember correctly , did it turn out that you had no cancer after all from your histology? Or am I getting you mixed up with another? To be honest I would feel less worried if this was the case, but as daloni said it’s best to get checked out as we can only guess and wonder, hopefully all is good Hun, let us know how you get on xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Hi Joanna, I had a clear discharge which started 7 weeks after my surgery and has continued to this day (10 months post surgery) .It has got less over time.  I have asked my oncologist, my gynaecologist and my specialist nurse about it but no one can explain it although they seem completely unconcerned.  I had begun to think I was going to have to live with it but it has decreased significantly in the last few weeks.  It is puzzling and has been a nuisance at times.  Mynownnwhite theory is that when something is removed from the body it leaves a gap which fills up with fluid.   Some of that has leaked out.  The internal organs gradually settle down and the gaps disappear.  Anyway whatever the cause is my team's reaction seem to suggest it's not a big deal.  I hope this reassures you a bit though I think you should check it out with your nurse for peace of mind.   Xx

  • FormerMember
    FormerMember in reply to Lara lou xx

    Lara lou xx, they did not find cancer after my surgery, but I earlier had a cancerous, quickly growing polyp which had been removed some months before the hysterectomy (I was diagnosed with cancer because of the polyp). You are right - the fact that they did not find cancer after the surgery makes me less worried (and the cells in the polyp were not aggressive - they were grade 1). I will let you all know if everything is OK!

    Joanna

  • FormerMember
    FormerMember in reply to hysteria53

    daloni and hysteria53: thank you so much, this is so reassuring! hysteria53, you may be totally right about this fluid. I do think this discharge may have something to do with the healing process in our bodies, So good to know the doctors and the nurse are so unconcerned about it!

    daloni, I agree with you - if there was any blood or any smell, I would be much more worried.

    I will mention this to my oncologist during the follow-up visit this month, but after reading your comments I will be much less worried! I have gained some weight in recent months and I know that excess weight is a risk factor for this cancer, so when I noticed this discharge, I could not help feeling a little bit worried! 

    Thank you so much to both of you!

    Joanna

  • Hi Joanna, oh I see Hun, I did not know about the polyp, sorry. I’m sure all will be ok though, our bodies do strange things and sometimes no one knows why, best to check if worried though , take care xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Hi Joanna,

    When my husband had an operation to remove his larynx 13 years ago he developed what they called 'a fissure'. It was a little gap between his mouth and the outside of the body. Initially food leaked through it, but very gradually that all stopped. I would say it took 18 months to finally heal up (he had radiotherapy which didn't help the healing).

    I think bodies heal up in different ways, but I think I would get this checked.

    My only other thought is that I had similar problems straight after my operation. I had a bath, stood up and urine just poured out of me with no control on my part. I had no feeling at all down there and only went to the loo at timed intervals!! It all settled in time.

    All the best xxxx

  • FormerMember
    FormerMember in reply to NannyAnny

    NannyAnny,

    Thank you so much for your reply - and so good to know that your problem has settled! I would have been so scared if it had happened to me! 

    But I have also noticed that after the hysterectomy I often don't feel that my bladder is full. When I am in bed, sometimes I realize that I should probably empty my bladder only because I can't fall asleep. I guess that - like in your case - it is because of the surgery!

    Joanna

  • FormerMember
    FormerMember in reply to Lara lou xx

    Lara lou, I definitely agree with you - our bodies often behave strangely for all kinds of reasons :) Fortunately it is usually nothing serious!

    Joanna