Thickened uterine lining - nauseous with worry

Thank Arla and fairycake i appreciate your replies. 

It seems that as much as i try its hard to predict the outcome of results by the behaviour of the hospital - seems crazy of me to even try!!

Some of you ladies have been through so much -  my heart goes out to you for the bravery you show and the help you offer others - so selflessly! 

My doctors called back this afternoon and advised that the hospital wouldn't discuss the results with them! The receptionist was very apologetic and said that she had been advised i could call myself but they wouldn't necessarily be able to give any results. Bless her for trying , it was good to feel they were trying to help and understood my worry. 

I called the hospital again and had to leave a message on an answerphone for my consultants secretary as she didn't answer. Alas no call back  - so no further forward. 

l don't know what choice i have now,  other than to just wait and see i guess. If i didn't know that the consultant had received the results last Wednesday it would feel better , but knowing that for a week on Wednesday they have known what this thing is growing inside me and they haven't told me feels a bit rubbish. 

So back to waiting - and hoping for the best. 

One concern i have which seems really trivial .. but I'm supposed to be going to Lisbon on Sunday for a friends birthday for 4 days which i told my consultant about. However, I'm due on my dreaded period whilst away and my GP had prescribed Progesterone for the trip to enable me a non blood bath trip ( sorry too much info) . Howevr, I'm now concerned that delaying my period will put me as being due around the time of my operation or just after and that would be a problem i imagine. Whether I could take the progesterone for longer until after the operation on the 9th i don't know. If taking the progesterone is an issue i will not go to Lisbon as i will be house bound whilst on my period.  I could really do with some advice but it seems calling the hospital is not an option as the secretary made it clear last time i called that they will speak to me when they are ready about results and not before. 

I guess its all trival in the grand scheme of things - amd it doesnt matter if i don't get to go away I'd just like to know my options and ultimately not let my friend down at the last minute. 

First world problems....

Xxxxc

Hi Diane,

I'm not a medical person so can't advise. Id suggest ringing your gp and discussing it with them. This is a different query so you'd be justified in asking the consultant for advice -I can understand the secretary not wanting to talk about results but this could possibly affect your op so it's worth a try x

Hi Diane,

Your gp should be able to help you with your question, or if not the hospital.

I was given pills to take every day after my hysteroscopy to help stop my bleeding (mine was every day with no real stop) I only took my mefanemic acid as my coil had started to help too and I didn't want to add to the pile of meds that I was talking.

The registrar told me that I could attend appointments even if I was bleeding, it was a big worry for me as I had no stop, but again these things are best double checked.

Lots of love 

Xx

Thank you so much ladies, for you own experiences and for the advice. 

I plucked up the courage to ring the mean secretary or my consultant again. This time i spoke to the job share secretary who was lovely and very helpful.. quite the opposite of the mean lady.  She wrote word for word a note of my quwey re progesterone to delay my period to the consultant and said that she would call me back. 

She called this afternoon and said that the consultant would be ok to operate whilst on my period (which i feel quite anxious about - but i know i need to overcome my embarrassment). The cinsuktant said i could take the progesterone but to expect heavier bleeding after the op if i delay til after the operation. They also said that my GP needed to take the lead with guidance as they have prescribed me with it. 

I asked if the surgery was still going ahead on the 9th April  - the secretary confirmed that it is and that the consultant has dictated a letter regarding the biopsy results which will be sent to me in due course. I feel this maybe reason to be hopeful ?! What do you ladies think?

My last consultant said that the polypectomy wouod only go ahead on 9th April if the results were clear, and the fact its going ahead is surely positive.  Also the consultant sending me a letter rather than speaking to me ... is that a good sign?? I hope I'm not getting ahead of myself but i feeling so much more hopeful. 

Would a polyp be removed and then tested again in full for any bad cells ?

Thanks for listening  xxxx

Hi Diane 

I'm so glad you've managed to speak to someone who could help you. I hope your results are good when they come through. If you're having a hysterectomy and cancer is known or suspected to be present then the tissues will go for testing and analysis and you'd be to,d the results at a follow up appointment. If your results are clear and you don't need a hysterectomy they may decide to move it or you or to take the poop away anyway. Hopefully your consultant or gp will clarify once you get your letter.

Here's hoping the news is good. If it is, we'll celebrate with you, if not we'll be here to support you x

Hi Diane,

I'm glad that you spoke to a lovely helpful secretary today, it's amazing the difference that it makes speaking to someone nice. 

Try not to stress about the procedure whilst bleeding, they clear everything up for you and leave you presentable (I had bleeding during a few appointments). When I woke up from my hysteroscopy I had a giant pad on and they kept checking it and me (if you had told me about it before I went I would have been mortified lol) but I was so out of it I couldn't have cared less. When I'm awake for procedures I tend to look at the ceiling and I can detach myself from what's happening. There are always pads and wipes on hand after the procedures, and usually a giant bin and hand washing sinks. The clinics always seem to have a toilet too. 

I'd speak to your gp about the pills and ask if there are any other options to help control it, they gave me pills to take every day which helped calm it down a lot. 

I don't think I could be embarrassed now, after all of the appointments and checks I'd show anyone whatever they want to see. For the medics it's business as usual and I'm sure they have saw it all before. 

I wouldn't like to guess at your results and what process they will follow but hopefully you are not far away from knowing what's happening now.

Lots of love 

Xxx

Thanks ladies - you're wonderful!

I can honestly say reading your replies seem to calm my worries and i feel so much more resolve to deal with whatever I'm going to be facing. 

I'v decided to go to Lisbon on Sunday for my friends birthday  - which is something that i had ruled out this time last week. But after reading the battles of people on here, including yourselves and how brave you all are... well i seem to have found my inner strength and realise that as hard as the waiting is ...in fact this is the easy bit... operations and recovery... that's got to be far harder. 

Thanks again ladies ... you really are very special people! 

xxxx

Hi Diane40

So glad you have decided to take the trip. Hopefully bleeding settles down and you get the letter with good news before you go??

I feel we have a lot of similarities? Age? No children. I can relate to the discharges you describe and the leg pain. Although I have spinal cord compression but these are new leg and abdominal pains for me. 

I haven’t had the heavy periods and terrible clots you have experienced. I use the implant and had unexplained bleeds Jan/Feb.

Having hysterscopy D&C and biopsy done on the 4th under General.  They have said they can remove polyps at the same time if found??

Have a wonderful time. Everything crossed for you.

Xxx

You go and enjoy yourself  , good for you to go. I am sure you will have a fabulous time in Lisbon for your friends birthday. I went for a two week holiday just after my diagnosis and before my hysterectomy and I don’t regret it, it was a fabulous holiday with some great memories and meeting some fantastic people. Oh and swimiming with the dolphins was my highlight. So for you it will distract you and give you some fon memories of your friends birthday too.

Thanks ladies,

I'm so much. happier now that my mind has adjusted and reached a level of acceptance that whatver is coming my way i cannot control and it doesn't have to be the end of the world -  but living with crippling worry and obsessing over it is actually awful. So,i have  kind of just let go and the relief is unbelieveable , i can even feel my body is less tense !

So looking forward to the girly trip away. Wow Gbear swimmimg with Dolphins sounds amazing.. what unbelievable memories to have! I saw dolphins in S Africa a few years ago and they were so beautiful and mesmerising to watch - cant imagine how wonderful it would be to touch them!

xx