Thickened uterine lining - nauseous with worry

FormerMember
FormerMember
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Hello,

I've recently had a Trans vaginal ultrasound which has shown i have thickened lining of the uterus -23mm! I have previously had issues with thickened lining 5 years ago (it was 12mm reducing to 8mm)and there was no follow up treatment as they did a biopsy and all was clear. 


I'm 40 ,no children and my periods have always been bad , but over the past year I've had horrendous periods with enormous blood clots and a lot of pain. Following my period ive experienced intermittent watery clear /pale yellow discharge and also passing what looks like flesh coloured muscular tissue. Just after xmas i had the worst period ever with terrible pain down one leg and in my hip and then i passed a huge blood clot - approximately 30cm wide. The pain in my side and leg instantly passed and then i had a period thar was just constant huge clots. 


I visited my doc (3 week wait for an appointment) and they felt it was likely to be fibroids,so sent me for the TV scan. The scan apparently showed healthy muscular tissue and that there were no fibroids but they couldn't find my ovarie?! The lady doing the scan told me that there was thickening but that it was ' different'  to the thickening of the uterus from last time and that i should call my doc in 24 hours to make sure i am referred to Gynae. That alarmed me and i have been nauseous with worry since.. Everything i have read points to Uterine cancer and hysterectomy. 


After speaking to the doctor today, i am now waiting for the urgent referral to the Gynae and feel utterly wretched with worry. I haven't got children despite my husband and i trying, and I feel that this makes it quite clear that children aren't going to happen for us.


From reading online - everything seems quite scary and that this must mean cancer. My doctor has given no indication what will happen next with the Gynae -can anyone help? 


The waiting just feels awful - i know i need trying and stay postive but nothing I've read says anything postive....



 

  • Fingers crossed for tomorrow I hope all goes well. It certainly a good opportunity to ask your oncologist all these questions about your seroma. I haven't as as far as I know experienced that however I do get some tenderness around my scar. I hope after all the time back and too the hospital that you have some relief now and I hope you feel better soon, its early days anyway from a hysterectomy but I hope you don't have anymore complications.

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  • Good luck for tomorrow Diane! Let us know how it goes. Will be thinking about you xxx

  • FormerMember
    FormerMember in reply to Rawdoodles

    Good luck for tomorrow.x

  • Good luck for tomorrow Diane, take a pen, paper and a second pair of ears with you, I shut down after hearing no more treatment, I didn't hear anything else lol. 

    If you are venturing out I hope you can get a nice lunch or treat afterwards to decompress.

    Lots of love 

    xxx

  • FormerMember
    FormerMember in reply to Arla

    Good luck - I've got everything crossed for you xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello,

    Thanks so much for the best wishes and prayers.

    Histology results of the growth in my womb sho adenosarcoma stage 1B, it had grown a little bit into the womb wall but at this stage they think it was all contained.  I'm being referred to The Christie, think for further scans to see if theres any spread and to see if i meed more treatment.  

    My Oncologist thinks i may not need more treatement but won't know until the other scans come back, and dhe is going to look at my ovaries to see if the histology shows any spread to there through receptors or marker pr something i didnt actually understand!?! Essentially i would quite like to keep them as i dont fancy the menopause too, she feels they may be able to be kept but obviously they will want err on the side of caution!

    Feel a bit numb as it seems like bad news, but then good news as its low grade and maybe by having the hysterectomy already the worst is over.... just that horrible fear of Chemo that scares me so much feels a step closer.

    I kind of feel like, what do i do now, just carry on as normal and it feels like a dream.

    Apparently i now get a card saying i get free prescriptions ... is that for life?! Well, at least theres a postive in this! Blush Not sure what else to say... all feels a bit bizarre...

    xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Diane40

    I know what you mean by bizarre, you feel like it is all happening to someone else, a bit unreal. Don't be afraid of chemo, it's doable, as others will tell you. I am to get my ninth cycle next week! 

    Did you have ct and mri scans? Hopefully the results will be back soon, so you are not waiting too long. It sounds like your doctor still has to look at receptors/ markers so more info to come your way. Then they can firm up any treatment plan.

    Stage 1b, did they tell you the grade of cell? Adenosarcoma is a bit different from the more common endometrial cancer, in that it starts in the muscle wall of the womb rather than the womb lining. Ach, it's all lying in a lab now anyway! Cheerio, he he!

    Lots of love

    Alison xxx 

  • FormerMember
    FormerMember in reply to FormerMember

    Gosh Alison you brave woman, 9th cycle wow!I just have a complete mental block and fear of chemo. Just pray it doesn't come to that. 

    They gave me no further info than 1B, so i don't know what a grade cell is. I will go back in a few days for ct and mri scans , ive previously just had a pelvic MRI. I really didn't understand the receptor /marker info and what really meant,  is just more to understand the type of cancer and how far its spread?

    I kind of feel like, what do i do now... whats next and a bit numb! Such an odd feeling! xxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Yep, bewilderment is the order of the day. What you are feeling is only natural. 'getting your head round it' takes time. Uncertainty is an unsettling thing,so it is. But one things for sure, your team are on your side and will recommend the best plan for you. 

    I had four cycles of chemo last year, this is me getting another round due to it re-appearing on my omentum. Even on chemo I've been on two holidays (and I'm going to Amsterdam in December), I've been to Edinburgh to see Wicked, I go shopping and go for meals out. The first week of it I feel a bit rough but the second and third weeks are better. I also, last year, Had radiotherapy on lymph nodes, every day for five weeks (you are only 'radioed' for about 20 minutes a day) and I didn't have any trouble with that. 

    Hope you get on all right

    Lots of love 

    Alison xxx 

  • Hi ladies

    need  bit of moral support, got my ultrasound tomorrow :/ having a regular one and a trans vaginal one which I’m dreading Iv never had one before has anyone else? Please tell me it doesn’t hurt and that it’s not massive. 

    Sorry im just really panicking.... don’t think I will find out anything tomorrow as I have a follow up appointment already booked in for next Monday. I’m just sick of all the waiting and worry I’m not coping very well

    waiting on my smear test results too which is making me more nervous.

    im so sorry for rambling you ladies have all been through so much your so strong hope you don’t mind me leaning on you xxx