VIN3

FormerMember
FormerMember
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Hi, 

looking for anyone out there that might be able to keep me sane.

After years of abnormal bleeding (all or nothing kinda thing), I was referred by the GP to local Gyncology. They found abnormal cells on the Vulua and took a biopsy which revealed VIN3. I was then referred to a specialist at Leicester who started me on the topical cream for 6 months, no luck, then I had cells lazer blasted in Nov, no luck. In my last appointment (2 weeks ago) he said it’s time for excision, I am a wimp and had been putting it off. 

Anyway, I received a copy of the letter which was sent to the GP informing them of the planned excision but it also said I had Ectroption on the cervix which was abnormal!!! He didn’t mention this in the appointment and I have been left confused! (Doesn’t take much these days) 

To add to the confusion, I had an appointment letter for June which I thought was for the excision but .... inside they included a letter for a procedure to have polyps removed. I don’t have polyps.

I rang the medical secretary, who is amazing and very informative, who said I had been booked for the wrong procedure. They have now booked me in the right clinic and I am expected to have the excision next month. I have also been booked for an internal/external scan of the cervix and a smear whilst they are down there. 

I am, as I said a little concerned, I have no idea what ectroption is, or what the implication of having an abnormal one is. The consultant didn’t explain what to expect from excision, how long recovery will be? Will I loose control down there? 

I have been really embarrassed about having VIN3 and have only told people who need to know. I have been grimaced at, asked for explicit detail and it’s horrid! 

I have just started my dream job this week and as part of the recruitment process I had to tell them, I informed my line manager via email to request my shifts to be worked around my surgery. I haven’t asked for time off or anything and she hasn’t responded. I am concerned I have jeopardised my new role.Frowning2️ I work remotely from home so can do work with my feet up. 

If anyone has any experience of any of this, I would be extremely grateful for any advice. I feel scared and alone.

Thanks 

  • FormerMember
    FormerMember

    HI! 

    im 34 & I got diagnosed with VIN 3 about 5 years ago & my flare up come & go. But I must admit I am itchy most of the time but a lot better than what I used to be. 
    my first ever flare up was very severe & painful. I used Aldara cream off & on over the years to control mine. 

    ectropion means erosion of the skin. It’s not dangerous it’s just very uncomfortable so try not to worry! most women with VIN have this as we have abnormal cells so the skin gets damaged. 

    please try childs farm cream from boots (the sensitive one) I swear by it.. I seen a article in the paper & it really did help with my skin.!!! Put it on the skin every day after a shower. 

    i know you will be very stressed but VIN is getting more & more common. It’s a pain in the bum for sure but u will get on top of it :) 

    any advice I can give just drop me a message !