Hello ladies - as you may have gathered I am new here. I really wanted things to go better but I fear they are going down hill. So I am here looking for some support. Last May after a few appointments with my Gyn Doctor (I'm in the states), I finally got her to biopsy spots that I was worried about. And they came back VIN3. So off I went to the doctor I had seen at Hopkins for a bad Pap smear about a year before. She'd cleared me after I had a conal biopsy. All was good. Except now in May I had these white spots on my vulva. Well I finally got an appointment at Johns Hopkins (which is considered a fairly elite hospital). I went to see her and it was confirmed that I had VIN3. She started me on Aldara (the generic). She had me do 2x a week for 12 weeks. I did as told but got very disturbed that all the literature says 3x week for 16 weeks. Since I had a few extra packets I started about mid way to increase the number of times per week to 3 times. I literally could not do it at night. If I did it at night I could not sleep. I work and have children so there's no way I could function. So I started to do it on days I telework and the weekend. I would put it on in the middle of the day, wear a dress so I wouldn't have to have anything touch the area and then wash it off about 8 hours later. It helped to keep myself busy. I figured it couldn't be any worse than doing it at night because I always get up to use the bathroom doing the night anyhow. Well things were looking great about 2 weeks ago, but then this week I noticed a new spot! On my clitoris. I am so upset. I really thought I would be home free but the original spot seems to have come back and now a new one. I go back to see the doctor on the 7th of October. I am upset that her dosage was wrong and worry that she's not doing things correctly. Things are going to get very busy at work, so I don't have tons of time now to have surgery. The spots are little. But still they are there. I think surgery is probably the best way to go. My body seems to have a love affair with HPV. I've had problems with regular warts on my hands and face and now VIN (which I know is caused by HPV 16/18). Â On top of all of this - I also had thyroid cancer 3 years ago and wonder if losing my thyroid might have helped HPV escape my immune system. Any advice would be helpful. I am very depressed about the sequence of events. Should I find a new doctor! How urgent is this? Â Anything. Thanks ladies, Donna.Â
Hello Snowystars and everyone 
I am new here having recently been diagnosed with VIN2 and VIN3 following an excision biopsy in July. I've been referred to the vulva clinic but still awaiting my appointment...so I'm in a similar position to yourself and I was wondering, after reading the whole of this thread how your recent appointment went, and also, did you receive a reply from the consultant Maisie recommended?
Thanks
Hi Private Bits (love the name!)
I haven't got anything sorted as yet - still waiting for my appointment to come through! How are you?
I got a message after yours yesterday that seems to have been deleted (think it was from Jane??) and I did manage to see it before it disappeared and I have requested to join the group (FB) - are you a member there?
Thank you to whoever messaged me yesterday with the information which I have acted on
