Vin3

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I was at my last consultation recently where I came came out in shock as I was told I would need a hysterectomy that would would require plastic surgery to see if it had spread to the anal canal. I was told I would be in hospital for 4 weeks 2 of which I would have to lying on my side and a further 4/5 months off work.  I live on my own and have no family so I am terrified of how I would manage all this and I feel stupid as I feel the consultant is so abrupt and I never ask any questions.  I have so many other illnesses due to being immunosuppressed I honestly do not know whether to go through with it.  Has anyone been through anything like this and did you have a successful outcome. 

  • Hi ,

    I am sorry you are going through this, it sounds like a lot to take on board.

    I have experience of VIN3, but my experience sounds very different to yours. I had a wide local excision to remove mine and there was no mention of a hysterectomy. I would be happy to answer any questions based on my own experience though so please do ask if there’s anything I can help with and hopefully someone with more experience will come along soon. 

    Do you have a specialist nurse? If you do then I have found mine to be very good for answering all of my questions. I know what you mean about not asking questions. I always feel rushed out the door and end up leaving with so many unanswered questions. 

    Take care,

    Vulval cancer warrior xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Carol

    I was just diagnosed with high grade VIM3. referred to gynecologist/ oncologist. Will be having surgery soon. I'm really worried that it wasn't caught in time. Anything you can share would be helpful.

    ty