Posting on behalf of my mum
was diagnosed with vulva squamous cell cancer 7cm 16 mm deep. No lymph node involvement. Mum due to other co morbidities is not a candidate for surgery, the surgery would have been radical with removal of bowels. The only treatment option is radiotherapy and then they would not be able to do this at a curable dose.
Have proton beam therapy been used for vulva cancer and what is its success rate. If mum could have withstood surgery and or full dose radiotherapy she would have a high chance of cure.
I am willing to pay for the full course of proton beam therapy if need be ( although we would not be able to travel to Prague for this. Does anybody have any information that can help me.
Also how do you ladies manage your pain, mums pain is worse on movement and when she as a wee she is in agony at those points.
At the minute she’s taking Zomorph gabapentin twice a day oromorph and paracetamol prn
thank you for you time and help
Hi and welcome to the online community
I'm really sorry to read that your mum has recently been diagnosed with vulva cancer. I know what an anxious time this will be for the whole family.
I typed 'proton beam therapy' into the search bar in this group to look for any previous posts which mention it but drew a blank I'm afraid. I have found this information for you though which might help.
Edit - forgot to ask if she's spoken to her CNS about the pain she's still in even with taking the prescribed meds?
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
