Finding the unknown primary

Good morning,

I too have CUP. Secondary found in right side stomach but like you no primary has been found. I too have had a second PET scan since they removed the secondry cancer which was only small.  I was told that sometimes the body's immune system can destroy primary but didn't destroy secondary sites.

I'm awaiting another appt to discuss things. Let me know how you get on

I'm still trying to get my head round it all.

Hi thank you for the reply, glad they managed to get the secondary out for you , unfortunately they cannot operate where my secondary was found just below the shoulder between shoulder and the breast bone , it’s such a worry isn’t it not knowing if it is there or not but yes iam hoping that our bodies or immune system have dispersed it , let me know how you get on , I have  a t scan this Friday to see if the radiotherapy has shrank it 

x

Hi I have accepted your friend request 

I have also been diagnosed with cup with secondary stomach lining cancer. I've been relatively well until last night. I had very little sleep due to agonising stomach and back pain. District Nurse administered morphine injection to little effect. After a 2nd dose I started to feel a bit of relief but very tired. Just wondering if it might be constipation causing the pain. Any advice welcome 

Hi

I too had secondry cancer in omentum in stomach . They have removed it but said it will be back

I get lot of pain in back and right side stomach but I've had this pain for 6 years in stomach and have had spinal surgery so I was just putting it all down to that but now I think maybe its been the cancer doing it as its just getting worse.  If I'm constipated I do find the pain does get worse. X

Skin cancers can go undetected and shrivel up and turn inward leaving no trace 

Australia is very up on this occurrence and there are warning documentaries about it. 

the older you are the more that you need to stay out of the sun you skin is thinner.  

Hi

I wasn't aware skin cancer could go inwards

My sister lives in Australia

Will research 

They are now saying I'm showing 2 dna in my biopsy not one

Hi. I have CUP, after 3 biopsies I finally got an answer. It is squamous cell carcinoma. 

It's internal. It's in the pelvic area wrapped around nerves and blood vessels so inoperable. 

Hi

Sorry to hear this.

How did they do biopsies as no one has mentioned doing any biopsies on me . They took biopsy of one they took out but since then more cancer appeared on opposite sude of stimach and liver.

Sending hugs x

I've had a cup diagnosis for 7 months, which they gave me 6 months to live at the time of my diagnosis. I did exploratory surgery and 3 biopsies and they never found the primary. They say under a microscope it's either a rare kidney cancer or a rare endometrial cancer. It has metastasized to my tissues, lungs, adrenal glands, liver, and lymph nodes. It's terrifying. I am or was a super healthy 45 year old woman. I did endometrial chemo and immunotherapy for 3 months and it didn't work. After that, I moved hospitals to MD Anderson in Houston. They're the number one cancer hospital in the world. They have me trying the only drug here in the US that's approved for both kidney and endometrial cancer. I get scanned today to see if it's working. I feel great on the new drug so at least my quality of life is better. Hopefully it's slowing or stopping the cancer. Unfortunately there's no cure, just trying to buy more time. And they said I'll probably never know what type of cancer I have. If I knew, I'd have many more options.