hi all,
Bit of a strange one today, I am trying to be supportive for my mum even though I don’t understand her decisions.
She’s been referred with multiple disseminated malignancies, mainly in the lymphatic system and a mass in the spine. Primary is unknown but potentially colon, wherever it is I believe there is a distant spread.
To this point was under a private hospital where it has become too complex and referred on the NHS CUP pathway.
She has cancelled her biopsy, because she says she knows the type so the nhs shouldn’t need to do it and should be getting on with treatment. We argue and bicker about it, she won’t listen, I cannot see how they would offer to treat without a biopsy. I am looking for your early experiences in diagnosis, did you have to have a biopsy? I’m trying so hard to be supportive even though I disagree with her decisions but she’s capable of making her own decisions so it is something I have to accept.
And with distant spread (avoiding organs) but in lymphatic system and spine, if anyone has had anything similar or knows if this is terminal? I’m getting nowhere and she is only at the start, I have no idea on prognosis or anything. It was something we were due to discuss with the biopsy results but now that has been cancelled.
