Feelings on having my wife diagnosed 1 year ago.

Hi FManicFteddy and welcome to the online community

I'm really upset to read that your wife feels that she's been "left to rot" and that she's "dirty and unwanted" because she has CUP. Do you want to tell us a little more about why she feels this way? Is this how she's been made to feel by her medical team or how friends have made her feel?

x

Hi there, gp, oncology, council, DWP, mp, chemist. It's all set up to fail. Oh and the hospice she's under, the management have led us a merry dance and along with our council have actively plotted against us. 

But hey Ho, I'm being told to forgive and love these muppets of hate.

Being left to feel that all these organisations have "plotted against you" must be awful and I can't pretend to know how you feel.

I don't know how you'd go about complaining about the DWP and your MP but you can use PALS (Patient Advice Liaison Service) to help resolve problems you have using the NHS and they can also tell you how to go about making a complaint. You can find your nearest PALS office by clicking here.

As hospice's are privately run I don't think PALs would cover this but the hospice will have a complaints procedure if you ask them for it.

Wishing you and your wife all the best and I hope you manage to resolve everything to your satisfaction.

x

PALS are just a protection force of the NHS. 

50 layers of management solely there to stop anyone getting to those at the top.

The hospice refuses to acknowledge our requests for data held on us. 

Specialist pain relief not arriving because the gp and chemist continually cock up and blame each other.we are having to sell our home and get a professional on all this. I will not let this go, nor will our 4 children......... 

Hi there thank you for your response and interest. PALS are just one of many lines of defence for these folk. When I reported what was going on to my mp she called police and had them come visit me accusing me of holding my wife hostage despite having carers, district nurses in up to 4 times a day. The ambulance was here 2 hours. It was the mp who reported me, the police told me. Because I told her my wife's fall was the first because she refused to help when the council refused to help.

The copper also said on the way out if I complain again they'll be back.

1. Council refused to come assess. Then she falls. Now you're censoring me. 

Please don't tell me I need help. There is none. Stop censoring me please.