Triple negative breast cancer after treatment

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  1. Hi, I'm 63yrs old .I was diagnosed with TNBC last September and I have had the lump removed and only 2 chemotherapy, due to illness and a completed 9 days of radiotherapy.
  2. I did cold cap for chemotherapy but after the second chemotherapy my hair started to fall out in handfuls. I should have cut it short before the treatment but I had hoped to preserve it, even if it went thin.
  3. The first chemotherapy was fine, no issues. It was flue season and I had a bit of a cold, normal winter sniffles, when I went for my second treatment. Staff were happy to go ahead with the second as my bloods ect were okay. After being home for a couple of days, my cold got worse and went into my chest. 6 days after the chemotherapy and I new the symptoms were not reacting to the cold medicines, so I called the cancer care helpline. Long story short, I ended up being admitted to hospital with a double chest infection and spent a week there.
  4. I decided not to continue with chemotherapy as tests had shown my liver had been affected, so I went onto radiotherapy.
  5. Radiotherapy was good. Very robotic and painless. An easy half hour out of my day.
  6. I have found that I still have my fatigue, or as I refer to them as my, just sit down moments.
  7. My joints have felt a bit sore. The most annoying is my finger joints which can affect my grip. The soles of my feet can be a bit sore first thing, but it quickly wears off. I find cushioned sole shoes help at work.
  8. I do trip if I'm not careful as my left ankle is a bit weaker. The good news is I'm working and able to get out and about. I have changed the way I do some things but I am very pleased to be alive and definitely will cherish whatever time I have on this planet. 
  • Thank you for sharing your experience. It sounds like you’ve been through such a difficult time, especially ending up in hospital with a double chest infection. I’m glad you listened to your body and sought help when you knew something wasn’t right.

    I smiled when I read your “just sit down moments” – that’s such an accurate way of describing fatigue. It’s encouraging to hear that you’re back at work and adapting to the changes, even with the sore joints and feet.

    I’ve recently been diagnosed with HER2-positive breast cancer that’s spread to my liver and pelvis, and I’m about to start treatment. Reading stories like yours reminds me that although treatment can be incredibly tough, people do find ways to carry on living and enjoying life.

    Wishing you continued healing and many happy years ahead. Thank you for giving hope to those of us who are just starting this journey. Two hearts

  • Hi  

    It does take some time to recover from treatment. Even though you only had 2 cycles of chemo, it’s quite a knock and the chest infection will also have taken its toll. I hope the fatigue, soreness and weakness resolve with time and that you can carry on cherishing your time. 

      , I am sorry to hear you have secondary cancer and are about to start treatment. I see you have joined our secondary cancer forum. Many of us survive well with secondary cancer as treatments have advanced so much in recent years. I have secondary tnbc, my spread was also to my liver. Wishing you all the best for your treatment. 

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