Diagnosed with TNBC in January

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Hello everyone!

I was diagnosed back on 27th Jan 25 with Stage 2b Triple Negative Breast Cancer. I have the BRCA1 gene which I had known about since I was 18 (now 33). 

It's taken me a while to realise that it might be good to join a forum so I can find other people's stories, I've so far had 11 weeks of Paclitaxel and 10 weeks of Carboplatin along with 3 weekly Immunotherapy. They had to stop my Carboplatin for the last 2 weeks as I ended up going into anaphylactic shock. In 3 weeks time I'll be changing to EC and immunotherapy every 3 weeks and I am terrified at what side effects may happen.

The docs haven't really spoken to me much about the surgery but I do know that even though my cancer is in the left breast they are most likely going to push for a double mastectomy due to the BRCA1 gene. Not sure how I feel about all this I'm not the smallest in the boon department and I know whatever surgery I have it is going to be a big old adjustment. 

My partner though has been absolutely great throughout all of this, we are hoping to go on holiday next year so fingers crossed I get through the rest of treatment and surgery with no need for anything more after.

I have been worrying about work lately as I want to go back but everyone tells me to wait. Especially since I don't know how long I will be off for surgery Pensive

  • Hey, 

    I have requested friendship… x

    I am 36 with TNBC… I have had a mastectomy. Single. No BRCA gene. 

    I have adjusted to being part of the one titty crew. I wanted a double but they wouldn’t do cos I don’t have the gene… 

    Also had radio and now on chemo tablets which are a breeze compare to IV chemo. 

    Please don’t panic cos whatever is thrown at you, you will plod along! 

    I have been on treatment for over 12 Months and won’t be finished until nearly the end of the year. Be about 18 months in general. 

    I was T2a as my tumour was 42mm when removed  

    You are not alone xx

  • Hey,

    I've accepted Slight smile

    I do hope that after surgery I won't need anymore treatment. I'm currently waiting for my scan appointment to come through. The lump has thankfully shrunk from what I can feel we just gotta find out how much!

    Wow that's a long time to have been in treatment so far. Hopefully the rest goes quickly!

    I'm looking forward to getting the green light, since 1 year after that me and my partner will be able to use our embryos!