Diagnosed with TNBC in January

  • 0 replies
  • 26 subscribers
  • 47 views

Hello everyone!

I was diagnosed back on 27th Jan 25 with Stage 2b Triple Negative Breast Cancer. I have the BRCA1 gene which I had known about since I was 18 (now 33). 

It's taken me a while to realise that it might be good to join a forum so I can find other people's stories, I've so far had 11 weeks of Paclitaxel and 10 weeks of Carboplatin along with 3 weekly Immunotherapy. They had to stop my Carboplatin for the last 2 weeks as I ended up going into anaphylactic shock. In 3 weeks time I'll be changing to EC and immunotherapy every 3 weeks and I am terrified at what side effects may happen.

The docs haven't really spoken to me much about the surgery but I do know that even though my cancer is in the left breast they are most likely going to push for a double mastectomy due to the BRCA1 gene. Not sure how I feel about all this I'm not the smallest in the boon department and I know whatever surgery I have it is going to be a big old adjustment. 

My partner though has been absolutely great throughout all of this, we are hoping to go on holiday next year so fingers crossed I get through the rest of treatment and surgery with no need for anything more after.

I have been worrying about work lately as I want to go back but everyone tells me to wait. Especially since I don't know how long I will be off for surgery Pensive