TNBC - advice/reassurance?

Hi Lou Lou C

Sorry I haven't replied sooner.  My recurrence was picked up on a CT Scan that I had after I was diagnosed with another breast cancer.

Best wishes

Daisy53

Hope all is going well with your treatment. I had my first cycle on 20th December after finding out I had stage 3 TNBC in my left boob. They also found a trace in my lymph node. I had two markers put in. My next cycle was postponed and is Friday 17th. This due to having a rash from head to toe after my first cycle. I seem to be struggling with my magnesium levels. 
Thanks 

Hi Nells0161

I had my mammogram on about the 20th November last year only to find my lump in the lymph nodes just 3 days later. I went to my GP who couldn't find anything in my breast but referred me on examination of my lymph nodes. My mommogram also came back as clear so thought i would be ok. The Breast clinic doctor on doing the ultrasound as soon as he saw the lymph nodes said i don't like the look of that. i pointed out a small change in the breast and he also found something there which he didn't like either. fast forward to 17th December and biopsy results came back as cancerous grade 3. They were still waiting for all the receptor results. They subsequently came back as Triple negative. I'm still waiting for my start date for Chemo. The wait is aweful as its already 5 going on 6 weeks from diagnosis,  i'm constantly thinking its spread my mind is in overdrive thinking every little thing means its spread. I also lost my little sister 16 months ago to inflammatory TNBC.

I can't understand how they can come up soooooo quickly - one day they're not there and the next day wham they're huge (my nodes which are confirmed as cancerous are about the size of an egg)

I know i will have 12 weeks of immunotherapy and 2 different chemo drugs (I can't remember the names) then a further 12 weeks of immunotherapy and EC before i have surgery. I will be requesting a double mastectomy and will fight for it.

Hi NLP

So sorry to hear you're going through this and the loss of your lovely sister.  

I had my first chemo last Friday (24th) which was 7 weeks after my initial diagnosis. 8 week after I found my lump.  Think Christmas got in the way.

It's the waiting that's the worst but honestly now I've got a plan of action and got the first one over and done with I feel so much calmer and a hell of a lot more positive.  Only another 23 weekly sessions to go.  Like you I'm having immunotherapy and 2 chemo then lumpectomy and radiotherapy.

All we can do is hope and put our faith in the wonderful NHS.  We will come out fighting and get through the best way we can.

I read somewhere that to not think of chemo as the enemy rather the weapon that defeats the enemy. This made me feel a lot calmer going to my first session.  Which by the way turned out to be very uneventful and quite boring

Sending love and hope we both get through this.  See you on the other side xx

Nells0161