Multi focal breast cancer

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Hi everyone. I'm new to this forum, although I was diagnosed four years ago.

I had two lumps. One was oestrogen/progesterone positive HER 2 negative.

The other one is grade 3 triple negative. I had micro and macro metastasis in the lymph gland.

I had a mastectomy and I take anastrozole to remove any oestrogen left in my system- I was 62 at the time.

It was the height of the COVID epidemic, I don't know if this was part of the reason, or my age, but the TNBC has been ignored. I've had no treatment of any kind, but due to the bipolar meds I was taking at the time it didn't really register that I had a possibly terminal illness. I've recently changed meds and now my mind is clear again I'm terrified by the fact that I have/had the Big C.

I've not told anyone else about this diagnosis, I don't want to upset my grown up children and grandchildren.

I'm not sure if I should tell everyone or not. I'm feeling a bit lonely and vulnerable at the minute and I'd like to be able to talk to someone about it, and get a hug but I'm worried I should have said something when I was first diagnosed.

Has anyone else on here got/had a similar problem and how did you deal with it? Blush

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It sounds like you've had a long and difficult journey so I can understand you wanting to know whether you should speak to someone about bot having the TNBC treated.

    I hope that I can show you that being diagnosed with TNBC does not mean you have a terminal illness. I received my diagnosis in April 2022 and, after surgery, chemotherapy and radiotherapy, I'm "cured".
    As for if you should speak to someone about your non-treatment then I'd say definitely yes. As you're still in the 5 year window of being diagnosed, you should still have access to a BCNS (breast cancer nurse specialist). Please give her a call, or the breast cancer unit, as soon as possible to talk this through with her.

    It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Please do come back and let me know how you get on.

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  • Hi Chandy

    Welcome to the forum and I am sorry to hear that you were diagnosed with triple negative breast cancer.  I was also diagnosed with triple negative four years ago and after having chemo, surgery and radiotherapy I made a complete recovery.

    Wishing you the best of luck.

    Best wishes

    Daisy53

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