Tnbc

So sorry to hear this i have tnbc stage 3 just had 12 rounds of chemo double mas. 8 lymph nodes removed told yesterday pcr results all cancer removed no cancer detectable but one node was cancerous i have still to get radio but they said i am cancer free im confused if lymph node still cancerous how am i free of cancer 

From what i have read of other survivors if it has returned you are stage 4 but it can be managed for yrs and you can still live a normal life theres had came back in their liver bones and other places think its treated with chemo not sure if its tablet form 

Hi Milocat,

I had tnbc in 2023, had a lumpectomy, lots of chemotherapy and radiation. Got a complete pathalogical response at the time.

In 2025 I had a tnbc local recurrence in the same breast. I then had a single mastectomy and 4 rounds of TC chemotherapy. I finished all treatment in August 2025, just praying it doesn't come back again.

I have to admit I did take it hard the 2nd time i was diagnosed, probably because it was so close to my 1st diagnosis.

I hope it's not a reoccurrence and you have nothing to worry about.

My fingers are crossed for you. Take care xx

Hi,

I think the problem I'm having is at the time i was first diagnosed I only heard the word cancer! After that it's blank, I just shut everything else out,and carried on. I didn't understand anything they were telling me or what was wrong. I think i thought I would go along with what they said, didn't question anything because they know what they're doing!!!

This time if it's back( hopefully it's not) I'll know what's happening, I'll know what my family and friends will be going through and that's a really hard thing to have going on inside your head!!! 

The first time I only knew something was wrong after having a car crash. I was having some pain, so they sent me for a mammogram and there it was! 

This time I have the same pain so I'm thinking the worst. My head won't shut up! And I'm not saying anything to anyone until I know. 

I'm so glad I found this group because I'm getting honest answers to my questions. 

So thank you for your reply xx

Hi, it's really tough to take everything in the 1st time. Was glad my husband was with me as he took in more information than me.

Once I got my head around everything the 1st time i made a list of question to take to my oncology appointments every week. I wanted to make sure I was doing everything I could to help myself.

At the time of my 2nd diagnosis I found it hard to deal with. This is going to sound harsh as it will be hard for family and friends to deal with but you'll  need all your energy and strength to take care of yourself try to focus on you. As a local recurrence is rare they didn't know how to treat me so after the mastectomy they gave me the option of chemo or not. I found having the choice harder than following the treatment plan the 1st time.

You head must be working overtime I was the same. If I knew how to get the thoughts you must be having out of your head I would share this. 

I hope you don't have to long to wait for your appointment with your oncologists to find out. Waiting is the worst xx

Hi sunshine15

I have an appointment with the breast care team on the 27th.. 

I think we do worry more about our loved ones. I know i gave the answer I'm ok! To everyone that asked. but that was so they didn't worry about me. 

If it's bad news this time, I'll ask the Dr to explain it in a way I can understand and I'll make sure I listen to what he has to say.

• Thank you again for your reply xx