metaplastic breast tumour inquiry

Hi Sherrill, so sorry you are in this situation.  I don't know how common this is but I doubt you re alone.  It's great your team have a good eye on you and have identified any further problem areas.  Whilst I'm sure it's gutting news it means your team are looking after you and although it may take a bit longer than you had hoped you will get there in the end.

Hopefully someone who has gone through similar will see your post and respond.

Wishing you all the best with your journey x

Hello, Sherril,  I was told on Wednesday post masectomy that I have triple negative metaplastic. I'm pretty down about it.

Am going to see the oncologist tomorrow, I've know idea what treatment will be. I can't offer any advice except the usual don't Google.!  

Take care

V

Hello V

Thanks for replying. I am sorry to hear you are in a similar position. I too am gutted and anxious. I was getting used to the Chemo. I am having a Mastectomy (probably) or lumpectomy on September 2nd. Seeing the surgeon this Thursday. Please keep in touch as will be useful to compare  treatments.  I was told it could be a different type of chemo and/or immunotherapy followed by Radiotherapy but other sources have suggested radiotherapy. There is a way forward. Best Wishes

S

Hi V

Sorry to bother you again but did the initial biopsy or MRI show any suggestion it was Metaplastic?

Morning. There results were uncertain after the initial biopsy they said either metaplastic or sarcoma or a secondary.

They sent my biopsy results to Birmingham sarcoma unit who after 2 and ahalf weeks said it was not a sarcoma. The tumour had grown significantly during the wait. I went to see the consultant who then booked me in for a masectomy. 4 weeks ago..waited 3 plus weeks for results from that which was when they told me metaplastic.

It's taken so long, I found the lump in April but it had been present on a mammogram in February. Told me mammogram was ok!!!

I would also like to keep in touch.  I will let you know what the oncologist says today.

Take care.

HI Vixsix

All the best for today. It al seems such a lengthy process. I have been on this journey since May. 

Take Care

S