TNBC, Diagnosed November 2020

Sorry spelt Capeccitabine incorrectly 

Soo57

I’m was also diagnosed with TNBC last September.  After chemo and surgery my oncologist put me on Capecitabine to prevent recurrence as one my nodes that my surgeon took had a little bit of cancer left in it. My TNBC was grade 3. I keep myself busy by doing the things I love like reading a good book and going for walks with my dog.

I know it’s easy to say but try not to worry about recurrence. I know people who had TNBC and have recovered from it and are doing well.

I suggest  you also join the best cancer forum as that is a busier forum than this one.  You will find others there who also have TNBC.

Hope this helps

Best wishes

Daisy53

Thanks for that Daisy53, I had a particularly bad weekend, but since finding this group and reading many experiences, it has helped. Probably most people with any cancer diagnosis worry about it returning in whichever form.

I have sort of boxed it up and put it away, I can’t live my life worrying, it didn’t help when a good friend of mine, whose daughter had breast cancer, informed me, before I had knew I had TNBC, “let’s hope you haven’t got TNBC, a girl I knew was dead within a year”, so since then my anxiety levels have been heightened. I still haven’t told my friend my diagnosis, I doubt I will.

I will look at the Breast Cancer Now forum too

i wish you all the best, looking and moving forwards, 

best wishes

soo57

Hi Soo57

I know of at least two people who had triple negative and they are now cancer free. 

Hope that set your mind at rest if only a little bit.

Best wishes

Daisy53

Hi, thanks for that Daisy53, I suppose, in effect I'm free at the moments surgery has removed everything.

Remaining positive, and thanks for your reassurance 

Take care

Soo57

Hi Daisy 53

Can I ask if the residual cancer you mention was in the sentinel or axillary nodes as I have had the same tnbc chemo then surgery  with micro mets in sentinel nodes. The choice was axillary radiotherapy or axillary clearance. No idea how to make the choice

Hi Abc63

it was in the sentinel nodes.

Best wishes

Daisy53

Was any further treatment suggested to you due to the positive node. After MDT meeting my options are axilla clearance or axilla radiotherapy.

I was put on chemo tablets for 6 months, two weeks on and one week off. The tablets I’m on are called Capecitabine.

My consultant offered just lumpectomy, but I opted to have nodes cleared as well, 8 were removed only one showed signs of cancer, now being treated with Capecitabine and radiotherapy 

good luck