Want to say hello

Hi I am on exactly the same journey as you, I’m 66. I’m starting my chemo on Tuesday for 6 cycles, surgery then radiotherapy. I’ll be perfectly honest it hasn’t hit me yet, I think this week May. I know I have an amazing team behind me from my surgeon to my oncologist and specialist nurses which I think is so important. 

I understand your worries as there is so much to take in and all this reading stuff they give you. The way I m dealing with it is to put my faith into my team and be guided by them. All the time I have asked for complete honesty from them and all have assured me there will be a cure. But they haven’t lied about the chemo side effects. I am focusing at the end of treatment going to spend 3 months in Florida with my daughter to recuperate.

my biggest dread is my husband doing the house work and cooking.

it is scary and mind blowing but try your hardest to remain positive and take each day as it comes. I’m new to the group but already found everybody really helpful and friendly. 

Love Lebs

Thank you for your reply... really need someone at the moment who is going through this please keep in contact xxx

Hi Triple Neg

Welcome and sorry to hear that you have been diagnosed with Triple Negative Breast Cancer. It understandable that you are feeling tear full and that you are afraid, it’s a natural reaction to finding out you have Triple Negative.

Triple Negative is very treatable these days and I know a couple of people who had the same cancer and they made a complete recovery and have been cancer for a number of years.

I was diagnosed with Triple Negative last September and have had 8 cycles of chemo and surgery to remove my lump and two two nodes from under my arm. There was still some cancer left in one of my lymph nodes so my oncologist put me on a course of chemo tablets. I had a CT Scan and a Bone scan after my operation to make sure there was no spread and there wasn’t luckily so the extra chemo is to make sure that the cancer doesn’t return.

Like Lebs I have complete faith in my team from my surgeon to my oncologist, which I found helped me cope with it though I did have my moments.  You will find your specialist nurses very kind and they do everything in their power to make sure you get better.

I’m on here on a regular basis and if you have any questions I will be happy to answer them as will others on this forum. I started a blog yesterday called My trip,e negative Cancer Journey so if you want you can head over to the blogs section of this website and read about what I’ve been going through.

Wishing you the best of luck with your treatments.

Best wishes

Daisy53

Db7 thank you so much ready need you guys at the moment xxx

Db7Thank you... it is good to hear from you trying to be positive.. but hard will go to blog section . thank you for being there hope you don't mind if I ask things from time to time as I know you to are going through a horrible time as well xxx

I had my first chemo session yesterday. It was nothing like I Expected. It was really calm and friendly. The nurse really took her time and listed to me. After discussion I decided not to go with the cap. I have now ordered a base ball cap for walking the dog and a couple head coverings from Amazon. I dint think a wig is going to be for me as I don’t plan to go amongst people whilst in chemo.

first I was given anti sickness tablet, steroid infusion then saline. A Dr came and went over the treatment and any possible side effects. I signed the consent to administer the chemo, more saline then docetaxel which took an hour, more saline then carboplatin followed by the last saline. I want to stress nothing hurt or was scary. The nurse kept coming along for st down chats. It all too around 4 hours but to expect 2 for my next cycle. I also has an MRSA test.
I was given: follow consultant appointment, chemo, bloods forms for my dr as I need these done before each chemo ideally the day before, anti sickness tablets if needed, pack of injections to start Saturday to avoid infection etc (not as scary as it sounds) a sharps bins to dispose of the needles, steroids to take the day before chemo and finally a COVID test before chemo.

please be assured nothing was scary and explained at every stage really well. Nothing was too much trouble and it was stressed not to worry, suffer as they are always there at the end of a phone 24 hours. Like me you will be in the best of hands. It probably was my most relaxing 4 hours in years. Apart from having to go to the loo lol but I coped. 

We are so fortunate to have the NHS they were all marvellous.

keep in touch my lovely and I hope it all helps. Lebs x ️

Db7

Db7 how are you doing? Thank you for up date on your journey, lovely to from you and have taken in your comforting words... and yes it has helped, to know from you what to expect... I do hope the next few days are kind to you and you are being well looked after. I am seeing oncologist on Tuesday, all test done...trying to stay calm maybe be better when I have treatment plan. Look after yourself my lovely and keep in touch db7 xxx

Hi Triple Neg

You should feel better when you have your treatment plan because it feels like you are starting to fight back against the cancer.

Wishing you the best of luck with your appointment with your oncologist.

Best wishes

Daisy53

Thank you Daisy53, I am trying...so so hard though....db7 xxx