Hi, i got blurry vision after EC chemo/immunotherapy. Eyes are fine as per Moorfields, just dry and yellow crusties. Eventually month 2 white slime. Iv had sinus and chest infections, hospitalised 3 times. No doctor can say what is going on but think its the immunotherapy. Blurry eyed for 2 months is mentally exhausting. Maybe theres something they are not telling me. Referral from Moorfields in November....Either way if anyone has info please let me know.
Hi Nat.N26
I assume the immunotherapy is Pembrolizumab? I didn’t have eye issues on it but I did have other major issues related to it. Kidney and lung damage. Loss of thyroid. By removing PD-1 systemically from your body it can mean the immune system attacks healthy cells. Eye toxicity is listed as one of the possible side effects. I think your oncologist should be working on the basis that immunotherapy is the likely cause and treating you accordingly. If you haven’t been given steroid eye drops, ask why. Ask if you need oral steroids. Essentially most immunotherapy issues tie back to inflammation.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
I would definitely push for steroid eye drops
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
