Scared

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Hi. I got my diagnosis last week. Grade 3, 3.7cm, no spread to lymph nodes. Will need chemo, lumpectomy then radio. My results have come back hormone negative, still awaiting HER2. I'm absolutely beside myself that this will come back negative which will make it triple negative. I'm worrying it'll be harder to treat and higher chance it will come back. I've been on Google since 3am and I've convinced myself I'm on a downward road! Help!!

  • Hi MrsBB

    So sorry to hear your news. I too was in the same situation in July 2022, when I found a large lump in my left breast right underneath, I went though all the proper pathways, it was Triple Negative and I was in bits, but I am a positive person and was determined to beat it, I had chemo first to shrink the two lumps that had been found that was 6 months worth, then a mammoplasty which was all taken out, then I had a week of radiotheraphy then put on cancer tablets for four months as a prevention. My op was in April 2023 and now I am out the other side. I too googled everything which sends you into more of a panic, but I stopped it and put my trust in my consultant and the breast nurses. Please have yourself a good support network and trust the NHS and have a postive out look and you will get through it, trust me. Good luck with your journey. Come on here when you can the support from others is valuable. 

  • Thank you so much for replying! Have you been ok since all the treatment? X

  • Yes, I am all good.  I have to go to my yearly mammograms at the hospital breast clinic and I am all clear, my 2nd mammogram is due in July. You have to regularly check every month yourself as you would do anyway. It is ok to be scared it is a normal reaction, but have a positive mind set and your family, friends network as support will certainly help you. 

  • Thank you. I've had such a blip this morning it's nice to hear some positivity. I just need to get through this chemo, the rest I can handle. How did you find chemo? X

  • Hi,

    Just want to say I was diagnosed with triple negative breast cancer that had spread to my lymph nodes in 2014. I had chemo, lumpectomy and radio and I am still here to tell the tale. I completely understand how terrified you are, and I googled at the time as well but the treatments have continued to improve and google doesn’t show this. Please try to avoid google, and focus on trusting your health care team. You are stronger than you think and yes treatment is tough but it is doable and you will get through it. X

    Jo
  • Thank you means a lot. Have you been cancer free since then? 
    I know it's not in my lymph nodes but im petrified the scans next week will show it's somewhere else x

  • Yes I have been cancer free since, I never take it for granted that it could return and over the years I have had plenty of scares with different health concerns but I am still here. 
    it’s natural to be terrified whilst waiting for scans and test results, the waiting is the hardest part but once you know you just learn to deal with whatever comes your way. 
    Keep positive x

    Jo
  • Thank you! I'm hoping it's standard they are doing an MRI and CT before starting treatment x

  • It is standard to do these scans at the beginning so they have all the information required to plan treatment. once you have a plan of treatment it kind of gets a little easier to handle. Don’t get me wrong it’s still terrifying and you will still have sleepless nights but you get into a treatment routine and it’s out of your hands you just do what you have to do to get to the other side. X

    Jo
  • did you cold cap? X