Hi
I’ve been self isolating, apart from carefully planned trips to the hospital for bloods and chemo, since early February. I live alone and I am 64 and was diagnosed with Grade 3 TNBC pre Christmas . I had a mastectomy followed by 4 rounds of chemo . How have I got through this ? Here’s how....
I have taken each night, day and sometimes each hour or minute as it comes. I have had the support of friends and family and it is amazing who can persist and last the course. I wake each day good or bad and look for what makes me smile and know that each and all of these miseries will pass though sometimes it’s unbearably hard. Confinement means I have to focus on what I have always taken for granted and see the best in it.
- I have the opportunity to love the emerging blossoms on the trees in my neighbours beautifully tended garden or the toddler running on the nearby grass without a care in the world or the images from gardens on Gardeners World or the programmes on television of beautiful places I’ve yet to visit and beautiful people doing amazing selfless things.
Sometimes this has been very hard to do but I will not give up. It has already been twelve weeks and unlike the rest of the nation I’ve been unable to participate in the food frenzy that has gripped us all so I love instead ‘ the taste’ of the beautiful examples of goodness and care we have seen all around us.
I have however also found somethings that helped me
I found a ‘white’ diet worked best so I ate rice pudding, Italian ice cream, small pieces of baked white fish, fine boiled rice, raspberry coulis, apple sauce, plain yoghurt, baked potatoes, mild real cheese, sweet tinned peaches made into smoothies with water, poached eggs, unsalted butter, porridge, cold water ,and sips of ice cold “Bottle green juice “ when nothing else worked. I ate not at mealtimes but as and when and what I wanted but tried always to “ keep my fluids up” . When I lost the plot I tried to refocus myself by thinking of which of the basics would most help.
Did I need a shower, some cream on my newly dried out skin, a sip or two of some thing cold a bit of sustenance or a bit of comfort?
I made time my own and slept ate etc as I needed. In a way I feel that I was lucky to be alone because I did not have to consider another’s immediate needs. The hardest thing was giving myself the injections after the steroids and the bruising I suffered reassured me that I was not ‘havering’ when I told others of my ongoing left side weakness following my stroke.
I also reverted to memories of my misspent youth and comforted myself with YouTube funnies, and musical memories Joan Baez 33 August and Forever Young and Melanie’s Beautiful People and Babe Rainbow , Bob Marley’s Don’t Worry , Beatles When I’m sixty four along with Andre Rieu’s O Milo Bambino Caro to name but a few.
I plan to learn how to ride an ebike and once again play the piano. I will dip my toes in warm waves gently lapping a crystal clear Italian Shore
I promise myself that I will never again wake so distracted by the pressures of my previous ’normal life’ that I will miss who and what has sustained me through this most challenging of times.
Onwards and Upwards
If I can help just let me know. I’ll be thinking of you .
Hi
Thank you, I'm ok so far. I wanted to start tteatment asap. It's funny it seems like a lot of waiting, results, waiting to start chemo...
I feel once i have the first session over with i will have better idea of what to expext.
At the moment stayong positive and trying to have a daily walk.
Kindest regards
Maria
and
One thing i will say about your first chemo is, it won't be as bad as you think it is going to be.
I remember going for mine and walking out afterwards thinking, was that it lol
But one thing i will say is, make sure you take any anti sickness tablets they give you. Don't like me think well i don't feel sick so i don't need them, by the time i did feel sick it was too late to take them. I was only sick that once, afterwards because i made sure i toook my meds when i should i was never sick again.
Also try to eat little but often, because of the sicky feeling i didn't feel like eating but that just made me feel even more sick. So i lived on chicken soup and cheesy garlic bread lol
You will have days you feel really poopy but they won't last, i use to say week 1 after chemo really poopy, week 2 not so poopy and week 3 nearly back to normal, all ready to start again.
One other thing i found helped is, count 1 down and not 5 to go.
Thank you
l will make sure to take everything they offer,
I have to have 4 sessions so as you say one down then only #3 left,
stay safe
kind regards
mimi121
Good afternoon,
Thank you very much for sharing your experience.
This eased my troubled mind and I will remember your wise words when I will start my treatment.
At the moment, I am dealing with the post op effects. Tomorrow I will have my treatment plan.
Thank you and take care of yourself.
Xx
Sandra
Hi
I feel once i have had the first session it won't be the unknown anymore. It's great to read someone's experience especially such a positive one.
Thank you so much.
Maria
X
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