Coming to terms with TNBC

FormerMember
FormerMember
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Hi all,

I was diagnosed with stage 1 grade 3 triple negative breast cancer 29 July 20I9, had a lumpectomy to remove a 11mm growth,  2 node biopsy removal in August,  thankfully it has not spread.  I Started  FEC-T chemo last week.

The cancer diagnosis was hard enough to take in, but they said the tumor  was very small, probably responding to a hormone and I  would have  injections to block the hormones, radiation and tablets  for next  5-10 years.

So I  got into a state when they told me it was a triple negative  tumor  - no initial targeted treatment, and I had to have chemo then  no ongoing targeted treatment.  Everyone I was able to communicate with with a BC diagnosis past or present had  a hormone responsive one so I felt very alone, also an innocent comment before I had my final insults indicated that  TNBC was a bad one.

I done some research, looked at the private testing research lab in Cambridge, but I was then referred for genetic testing as it is in both blood lines of my parents. I also asked for an additional appointment to question my oncology consultant about treatment decisions made in my absence.  (MDT).  The consultant  agreed to see me  and went through all my listed queries, explained my pathology report,   and explained a lot more than a regular appointment slot allows. This meeting informed me about NHS protocal in these matters,  helped me to understand why I needed chemo and gave me more detailed info,  in turn  I felt more in control and better understood  my treatment needs now  and my responsibility to healing my body now and survival now and in the future. The consultant did say she admired my insistence on answers to my research queries and could see it made a difference to my acceptance of needing chemo.  

I am using this chapter in my life to accept that my body is telling me it is out of balance to effectively fight off malfunctioning cells. With chemo to  evict any hiding sleeping cells, I have to look after my diet,  remove negative emotional /stress baggage, increase exercise  regimes.  This dark journey is testing my core strengths,  but ultimately building a stronger me, with a purpose .

 TNBCPunch

 Its really comforting to find this group. Slight smile

 

 

  • FormerMember
    FormerMember

    Hiya

    I was diagnosed with TNBC in July 2018 i had FEC T chemotherapy as part of my treatment it worked wonders, i am now cancer free. 

    So get kicking butt and you'll soon be out the other side xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello script fan

     Thank you for your encouragement . I can see from  your profile that you went through alot   to evict the intruder .

    I am determined that with the initial standard medical treatment and personal understanding of  positive body and mind influences, i can kick this thing to the  curbPunch 

     How did you get on with the chemo, I have been fine 14 days into my first cycle  just runny eyes,nose  and a little bunged up.

  • FormerMember
    FormerMember in reply to FormerMember

    Now it’s over I can say it wasn’t too bad, I had one short stay in hospital after my 4th which was my 1st docetaxel but that was because I caught a infection from one of my god children. So as long as you keep germ free and look after yourself you should be fine. Try counting down rather than up. So one down rather than 5 to go xxxx 

  • Hi

    I haven't been on the site for a while but last year was on it all the time.  I got diagnosed April 2018 with TN and like (hope you're doing ok?) I had FEC-T.  I had 4 of each.  I must admit I found the Docetaxel harder.

    I had lumpectomy and 15 x rads but I got the all clear last December.  I finished rads beginning of March this year.

    Just take each treatment as it comes and think that's one step nearer to the finish.  I had my moments but on the whole was very positive throughout.  There is light at the end of the tunnel.

    All the very best with your treatment x

  • FormerMember
    FormerMember in reply to Bluebell22

     Hi Bluebell 

    Thank you for your  reply.

    I  had my 2nd FEC yesterday.   I hoping it goes well as my first - no major side effects. I have heard a few times that the Docetaxel is harder, but then I was also told I would be knocked down with my 1st chemo. b ut as i am finding our every one  reacts differently and its good to hear postinve journey outcomes.

    I am  more understanding  and accepting of my  BC diagnosis,   (little squatter is not coming back),  and  focusing on my recovery and adjustments/ changes to help my body & improve my long term health.

    Yes reply from  was very comforting. 

     Knowledge is power and power helps boost confidence and healthy morale.

    Slight smileMuscle tone3