Awake and scared

Hi

Waiting for results is the worst!! Google makes you want to throw the towel in regarding TN but it is really outdated and doesn't relate at all.

I was diagnosed last April.  I did 8 rounds of chemo (every 3 weeks), had a lumpectomy.  I was given the all clear a week before Christmas.  I then went on and had 15 radiotherapy sessions.

There are alot of TN survivors who now lead busy, fulfilling lives.  It can seem daunting to have TN because we can't take any tablets after treatment as it isn't hormone related.

Are you having chemo?

It's a scary journey but you'll do it.  This time next year you'll probably be writing a positive post to someone else who has just been diagnosed.   X

Thank you for your reply Bluebell22. I am making an effort to keep away from Google now.

it is heartwarming to read that you have the all clear. 

I have had a lumpectomy and removal of sentinel node with a further re excision, wash out and removal of more tissue yesterday. I have been told that if they haven’t got it all this time I will have to have a mastectomy

Once my wound is healed I will be having chemo and then radiotherapy.

My breast care nurse doesn’t seem so forthcoming and I know there are no guarantees but I haven’t been reassured by her responses either! 

I'm a member of Bluebell22's club. 

I was diagnosed with TNBC last July after 6 chemotherapy treatments, a lumpectomy with 3 lymph nodes removed,  another lumpectomy and finally a mastectomy with 1 lymph node removed i now have the all clear.

I did the google thing and thought my days were numbered, how wrong was i. 

I'm sorry you don't feel reassured by your BC Nurse.  How long have you got to wait for your results?

I had chemo first to shrink it down so I could have a lumpectomy, as I'm not particularly big busted.  Chemo normally works really well for TNBC.  I was lucky and had a complete response.  I know people fear chemo but it's another weapon and it wasn't as scary as I thought it was going to be.

I did a trial so was monitored quite closely, so that reassured me a bit as I had 3 MRI's before surgery.  You need to be able to talk openly to your BC Nurse.  Could you possibly request another? I know they can't promise you anything but you need to feel like they're on your side.

As said, she had a bit of a longer journey, but got the all clear recently.  Hopefully you'll get it this time. 

This is a great site to be on, 24 hours a day there's normally someone to have a chat to.

Please let us know how you get on x

I have only spoken to my named nurse on the day I received my diagnosis, 2 days later when she rang to see how I was and the day I signed my consent for my first op.

I just feel like she’s ticking boxes and seems quite flippant in her responses. There are 2 others and I’ve spoken to one of them a couple of times.

Do they stick with you through the chemo? I am almost hoping that I get a nice oncology nurse who I can bond with a little better. 

It was the first time I posted on here at silly o’clock this morning and you guys rock! Thank you for your honesty and for sharing your stories.

I have my own named breast care nurse but it isn’t always her I speak to, I can speak to anyone of the breast care nurses. I guess I’m lucky all the ones I’ve spoke to have been amazing xx