Just diagnosed

FormerMember
FormerMember
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Hi, 

I was diagnosed last Thursday and was told today I’m triple negative.

Ive just googled (!) and scared myself silly! I know not to google but couldn’t help myself, I know why I shouldn’t now.

Anyway, MRI on Saturday, trying to take this one step at a time but this is the first proper panic I’ve had. 

Any words of wisdom???

  • FormerMember
    FormerMember

    Hiya first can i welcome you to the community none of us wanted to join,but the best place to be under the circumstances.

    You did exactly the same as what i did, even though i'm the first person to say do not google. I thought my time was up. Guess what?!?! 2 weeks ago i got the all clear :O) 

    So stop panicking and use your energy to kick it, you can and you will do this xx

  • Hi  , 

    Firstly, so sorry you find yourself here. 

    Google is the worse in this situation. My breast nurse told me not to google and I surprised myself as I didn’t as she said so much of the information is so outdated and so much doesn’t relate to your particular case. 

    All you can do is take it a step at a time, just like you said. You’re bound to worry or panic as it’s fear of the unknown. MRI will give your team a better idea of how to treat you, it’s all in your best interest.

    Good Luck on Friday,

    Let us know how you get on x

  • FormerMember
    FormerMember

    Hello, like the others said please don't Google.I had tripple negative and had finished treatment 2 years ago all the mammogram clear and I am still here and doing well.I am beeing positive and I think about myself I am cured and that's the true I have no signs of cancer.

    When I asked the nurse why there are just negative stories she told me  most of the people who have been treated successfully they carry on with their life and they are busy.

    Even me after treatment went back full time, got promoted and now I am having a baby.

    So please stop Google it just cause you more anxiety.

    Anyway I hope it Will go all well for you.

    Take care

    Denisa

  • Hi I got diagnosed April 2018 with TNBC.  I had 8 rounds of chemo, which completely destroyed my tumour.  I then had a lumpectomy (although thete was no tumour, I still had to have the same size plus a bit more removed). I also had 8 lymph nodes removed for testing.

    All came back a week before Christmas that I had the all clear.  I then had 15 sessions of radiotherapy.  I Googled a couple of months into diagnosis and wish I hadn't.  It's so negative and so out of date.  There are lots of survivors of TNBC who have been cancer free for many years.

    Good luck with your treatment.  Remember, every treatment you have is another step closer to getting better

    X.

  • FormerMember
    FormerMember in reply to Bluebell22

    Ah this is so positive. Well done. 

    I was diagnosed with TNBC 3 weeks ago. I’m having similar treatment to yourself. I’m starting my Chemotherapy in 2 days. 

    I am so frightened fearing the worse. Had sleepless nights since being diagnosed. Reading this make things seem so much better. 

    Thank you  

  • Ir is very scary when you get diagnosed. I felt much calmer when my treatment started and kept thinking I am now on the rosd to getting better.  It wasn't as scary as I thought it would be.

    I found this site great because everyone is in a similar situation or has been and there is plenty of advice.  I think the first chemo is the worst, only because you don't know what to expect and you don't know how you're going to feel and if it's normal to feel that way.

    I had a 24 hour line to ring.  If I wasn't sure, I just phoned them.  I also made a note each day about how I felt, I could then compare this to my other chemos to see if I felt the same each time around the same days.

    You will get through it and come out the other side.  What kind of chemo are you having? X

  • Hi

    I was diagnosed in March with TNCB. 

    I have had 2 cycles of paclitaxil/carboplatin (all this weird language will become familiar soon!).

    Chemo has been kindish to me so far. Have fatigue for a couple of days a week the rest of the time I am OK. I clipped my hair short before the end of the first cycle. I have an amazing wig and loads of hats. 

    Any questions please ask xx

  • FormerMember
    FormerMember in reply to Bluebell22

    Ah thank you for your kind words. Yes I think I might be ok once I get going. First session tomorrow. The first chemo I’ll be having is Epirubicin and Cyclophosphamide every three weeks. X

  • FormerMember
    FormerMember in reply to FormerMember

    Hiya Good Luck for your first chemo tomorrow, you will find the waiting is the worse and once you've been and had it you'll be surprised how easy it is.

    I had Epirubicin and Cyclophosphamide every three weeks. The Epirubicin is a lovely shade of red and will turn your wee the same colour. As my chemo nurse gave me the Epirubicin she told me "The is the one that will kill the BLEEPER" except she didn't say bleeper lol 

    My advice to you is make sure you take all the anti sickness medication you are given, even if you don't feel sick. Make sure you drink plenty and eat little but often. I never felt like eating but then felt more sick because i hadn't. Eat whatever you fancy, i lived on cheesy garlic bread and chicken soup.

    Take each treatment at a time and be happy to know you are now on the way to getting rid of it. 

    Good Luck.

  • Good luck tomorrow with your chemo - you'll be fine x