Hello, I’ve been diagnosed with TNC stage 2 and not in the lymph nodes, I have a MRI scan on 28th and then will start the chemo regime, obviously am worried especially about the side effects. I am having SACT…Carboplatin..Paclitaxel and EC with Pembrolizumab , I just wondered if anyone had this and how they coped?
many thanks
Frances
Hi Corner Cottage
im sorry to hear of your diagnosis. I was diagnosed with stage 2 TNBC last October, also not in lymph nodes, 39mm. I have just finished 3 months of immunotherapy plus carboplatin and paclitaxel and had my first dose of Immunotherapy with EC last Thursday- cycle 5 of 8 planned cycles. I have been cold capping and it has worked well - there’s been some thinning but only I notice. The first month or so was the worst while my body adjusted to the drugs - I had headaches, constipation and dizziness. It took me a while to realise I needed to take three sachets a day of the laxatives they gave me in the first week of each three weekly cycle and that I didn’t need the anti sickness medication in weeks 2 & 3 when I was only having Paclitaxel. After that my stomach settled down. Other than that my muscles feel weaker and I get fatigued but I’ve gradually been able to build up my daily walks. Oh and I was pointed in the direction of some breast cancer charities that off online nutrition and exercise which have helped me to positive: Penny Brohn and Future Dreams. Hopefully some of this might be helpful to you. All the best for your treatment.
Hi thank you so much for all the info..much appreciated, interesting about the cold cap as has heard many different opinions and was ready to brave the shave!
mine is the size of an olive (as the doctor said) about 2cm ..obviously am worried about the start of chemo but has to be done and reading the side effects is like a horror story!
also worried what they will find in the MRI Scan.,so not sleeping too well and my appetite is next to none!
once all started I’m sure I will get into a routine and have a goal.
i hope you are well on the way to recovery now xx
thanks again for taking the time to reply
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