Sacituzumab govitecan (Todelvy) - advice/experiences

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Hi there, 

My Mum has secondary triple negative breast cancer. It's quite advanced, with mets to her lungs, lymph nodes, neck, bones, brain etc. She's been having chemo and immunotherapy for the last few months (I'm sorry, I don't know the names) and has been told today that the treatment isn't working and the cancer has advanced further. 

The hospital have applied for funding for Sacituzumab Govitecan (Trodelvy), I believe this has recently come out of trials. 

The side effects look quite brutal.

Does anybody have any experience of this type of Chemo? If so, I'd really appreciate you sharing your experiences. 

Thanks 

  • Hi Rainbows84

    Welcome to the forum and I am sorry to hear about your Mum. While I don’t have any experience of the chemo you are talking about I noticed you haven’t had any answers yet so I thought I’d reply to welcome you to the community. I suggest that you join the Secondary Breast cancer forum to ask your question about Trodelvy.  You could also put your question to one of our nurses in the Ask a nurse section of the website, though be prepared to wait a couple of days for an answer. Here’s the link to the Secondary Breast Cancer forum Secondary breast cancer forum  and the link to our Ask a nurse Ask a Nurse .

    Hope this helps.

    Best wishes to you and your mother

    Daisy53

    Community Champion Badge

  • My mom is also going through TNBC with mets in several areas. She recently started Trodelvy. How did your mom do with this treatment? 

  • Hi rainbow  my wife has been  on trodelvy  since  February following  a recurrence  three months after  original  treatment  which sadly  never  worked

    Was diagnosed  with  two positive tumours  clavicle  lymph  nodes plus two nodes on her lungs in operable 

    She is now cancer  free all tumours  gone 

    Due to all preventive  meds not working  at present  she is on trodelvy  for life as there is no statistical results  to take her off it

    At present  she is one off  4% of  trodelvy  users who have had a full response so aways new treatments coming  through