Hello, first time visiting a forum.
I was diagnosed in Feb 2017 with TNBC at age 47. Lymph nodes were clear. I had 6 rounds of chemo, a lumpectomy and 19 rounds of radiotherapy followed by 2 yrs clear.
In June this year I was expecting my 3yrs clear however it had come back. I was due for a Mastectomy following a CT Scan. The CT Scan showed spots in my spine and liver so a Bone Scan and MRI was required. I had the Bone Scan pretty quickly which came back clear however wait times during Covid for MRI was horrendous so I paid privately. The MRI still didn't confirm the TNBC had spread to the Liver so next thing was a Liver Biopsy which came back clear. My Surgeon, Radiologist and Oncologist wanted it repeated as they were not convinced with the result. 5wks later I had the 2nd Liver Biopsy which again came back clear and again they were not convinced. The Surgeon agreed to go ahead with the Mastectomy which was 26th Oct. I then had another CT Scan before seeing the Oncologist. On 24th November the Oncologist informed me there were multiple lesions on my Liver which he diagnosed as Cancer due to the difference in size between my July CT Scan and my November CT Scan. Apparently the location of the largest lesion was virtually impossible to get a biopsy from.
I've been given a series of options for my now Terminal Cancer however a pathology test and blood genetic test will determine one or two of those options being ruled out so 6 months from diagnosis I still don't know my treatment plan. I'm having a port fitted in my arm tomorrow ahead of treatment and I can't help feeling as soon as it goes in that's the beginning of the end.
I don't want to feel rotten on the weekly chemo they are suggesting and lose all my hair all over again when my prognosis is not good anyway. The Oncologist has said the treatment will give me months not years so I'm really wondering what is the point of having months of feeling awful. He did say the side effects will build over time and I can take a break if I want to.
I am torn - do I try it and see how it goes or do I say no and enjoy the rest of my life feeling normal for as long as possible. I've completely changed my diet and taking minerals and multivitamins to get myself healthy. I have no symptoms at all at the moment and am slowly getting used to having one boob.
I'd love to hear from anyone else who's experiencing a metastatic triple negative breast cancer - if you opted for treatment and how it's going.
Thank you.
