Advice please

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A few days ago I contacted my GP via the e-consult portal to discuss what I think are enlarged lymph nodes above my collarbone.

My history - I had an ultrasound 3 months ago on different enlarged nodes in my neck - the sonographer who performed the ultrasound suggested there was a lymph node (not the ones I felt) which would benefit from followup in a few months time.

At the weekend, after my contact via the e-consult portal, I felt a lump on the front right side of my neck, close to the enlarged lymph nodes. I've worked out (via Google!) that this is likely to be my thyroid. I have felt something there for the last few months but not as pronounced as it is now.

As a bit of background I  had breast cancer 13 years ago and I currently have a stable meningioma.

The GP yesterday came back with an email saying they would refer me for an ultrasound likely in the next month or two. I sent another message via e-consult updating about the swelling on my thyroid. I had a response back saying a clinician would contact me on 22nd September.

My question is - in pre-covid times, I would have phoned the gp to get a same day appointment. Should I be pushing the GP to see me now? Obviously I suspect the swelling is not good news. I've done too much googling and now I am concerned. Also we are fortunate to have private medical insurance through work and I told the gp this, is it worth pursuing an ultrasound sooner than a few months time? Should I just take comfort that the gp hasn't assessed this as urgent even though he hasn't seen me? The thyroid swelling is visible when I swallow.

Thanks in advance  for any advice you can have.

  • Hello,
    If you've had cancer before, it's natural to lean towards assuming the worst whenever there's a lump or bump. You are clearly highly aware of changes in your body which has to be a good thing.

    The other good thing - if such things can be said - about thyroid lumps is that they tend to grow VERY slowly.  It's not unusual for people to be monitored for years before getting surgery and often if people are diagnosed during pregnancy (which is more common than you might imagine), surgery and treatment are often put off until after birth or later in the pregnancy. Why do I mention that? Just to say that a week here or there is unlikely to be of impact. That said, getting things seen asap is good for the soul and the anxiety.

    Private insurance varies a lot. If you've got a good policy that doesn't rely on you being referred by your GP first, I'd give them a call and talk it through with them. I had AXA PPP and BUPA and both were really great for discussing things and getting tests done. If you're not familiar with the rules of your plan, give them a call. 

    Ultrasound is only step one. Usually, it's used to determine whether you need step two - fine needle aspiration. If you have a monster lump like I did, you can skip straight to step two. Fun! Even step two isn't guaranteed to tell you if you do or don't have cancer. 

    I'd also suggest to be ready to tell the doc about any treatment you had on your breast cancer that might have contributed to damaging your thyroid. Radiation treatment can knock a thyroid out of normal behaviour. About 90% of thyroid lumps ARE NOT cancer - so, to paraphrase the Hunger Games, the odds are ever in your favour. But still, it's important to get things checked out. Not in a 'hold the front page, run to the surgery way' but don't let them fob you off for too long. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Hello Barbara

    Many thanks for your response. 

    I'm usually of the mindset that I only worry when I need to worry but there is something about this that is making me more worried than I would be with an undiagnosed swelling. And my body seems to make lots of bumps so it's something I've been through more times than I would like!

    I contacted Bupa and they have something called Direct Access and so have been able to give me some names of suitable consultants. I shall contact one of them tomorrow.

    I didnt know that radiotherapy can affect the thyroid. I do hope that you are fully recovered from your monster lump!

    Thank you for your advice and your words of comfort. I hope that it's nothing but if it is something it's better to find this out sooner rather than later.

    Best wishes

    Salma