Follicular Thyroid Cancer abd Radioactive Iodine

FormerMember over 5 years ago

5 replies
26 subscribers
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After finding I had - as I'd suspected - a 2.5 cm growth in my thyroid I was referred to an ENT Specialist. I had a FNA but waa inconclusive. As my bloods were normal I took the Specialist up on the offer to have the left side on my thyroid removed (right side was removed back in 1984). Since found - after GP, Ultra sound and Specialist all said they were sure it was nothing that I actually have inimally invasive Follicular Thyroid Cancer. So now have Radioactive Iodine treatment booked for tomorrow with a full body scan booked for later this week. I feel rather numb and get weepy as my husnd is due to retire early next year and I can't seem to make any decisions until I know tge outcome of the full body scan so I know whether it has spread. I am so dubious given that previously I thought it was just belts and braces which then turned out yo be the 'Big C'. I've found that my siblings just don't want to know and don't contact me even though I've told them my news. So in a nutshell I'm finding it quite a lonely place. Suppose it's quite character building. So just wanted to say I find it comforting to hear others writing their concerns, emotions and worries on this site - it has been a great help.

FormerMember over 5 years ago

Sorry to hear your news. I hope tomorrow and the next few days go well. I had the radio iodine treatment on Monday last week. It isn't too bad but the loneliness gets hard so pack plenty of things to do and plenty of drink too. If you have a water filter then I'd suggest taking that with you as they'll encourage you to drink plenty of water and what was from the tap was a bit merky where I was.

Lass over 5 years ago

Heya LL,

Welcome to the forum, even though I'm sorry you have to be here.

First off, siblings suck whatever their ages. Mine have almost never reached out in the last 7 years to see how I am. Not sure why, as I'd be checking in on them regularly if the positions were reversed.

Minimally invasive is good, well, not good, but not the worst situation to be in. Even if it has spread, that still doesn't mean its the end of anything. When they diagnosed me, my WBS showed it had spread extensively. But I'm still alive and kicking 7 years later.

So try not to stress and worry too much, easier said than done I know. And don't feel lonely, you've got us bunch of weirdos and reprobates to keep you company. Also, if you pop down to your local Mac or Maggie's Centre, there will be folks to talk to there, groups to join for support, groups to craft with, and lots more.

Take care, and shout anytime!

Lass

I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

FormerMember over 5 years ago in reply to FormerMember

Hi DH123,

Thank you for your kind words and sharing your experience

I do have a water filter -:so thanks for the heads up will take that along. I've books, magazines, fruit sweets to suck and my daughter in law has kindly lent me Lord of the Rings box set. So hopefuy will pass the time away quite quickly.