I had RIA in May and the scan just afterwards showed a possible nodal mediastinal metastasis (in the upper chest) and remaining disease in my neck. My cells are 50% ‘tall cell version’ . I’ve now been told to wait while the treatment continues to work...
I have just received a letter from the hospital which is a copy of the one sent to my doctor setting out the details of my appointment last week at the hospital to discuss my upcoming operation which should be quite soon. Seeing everything set out is...
Hi everyone, I’m a bit nervous about posting on here but I just wanted some post surgery advice… I am 25, and recently found out I have a Thy4 nodule (that I have called Terry!) and am due to have my Hemi Thyroidectomy next Thursday. My pre-op is...
Hi All, I had a total thyroidectomy a month ago due to papillary carcinoma and Graves disease. Thus far, I have had no oncology involvement in my treatment. I do however have an oncology appointment on Monday and I was wondering what the purpose of...
I’m looking for advice about rising calcitonin levels - my husband had surgery in 2012 and 2013 for medullary thyroid cancer that had spread to lymph nodes after initial drop in calcitonin after second surgery the levels have risen steadily ever since...
Hi, just looking for some lived experience and advice. My husband was treated in December 2021 for papillary thyroid cancer - had a total thyroidectomy and right neck dissection. He then went on to have RAI at the end of March. He had his follow up oncology...
Hi all I’m a new member, almost 65 and reasonably fit. Has left lobectomy in January which found 3 cm invasive encapsulated follicular variant papillary thyroid cancer, no lymph nodes taken. In May had right side removed has had a small nodule not previously...
Hi all. I just had nuclear medicine oncologist appointment and she really let me feel down. I will have RAI on 23rd of June. I am in this group and also another one where I read loads of stories of people with papillary thyroid cancer (my had spread to...
Hey everyone ️ I'm 6 weeks post total thyroidectomy today and am waiting on a date for my RAI treatment, and wanted to reach out and ask when people were assigned an endocrinologist and what their follow up appointments post treatment have looked like...
Hi! I know you can't make my decision for me, but I was hoping you could help me with the reasons why you made your decision If thats ok? I've just come back from my appointment with my consultant. On one side of my thyroid the result is 3f so that...
