Radioactive iodine recovery

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I had my radioactive iodine treatment 2 weeks ago (high dose) following a full thyroidectomy and removal of some lymph nodes which were also found to have cancer in them. Feeling absolutely exhausted at the moment and also very worried about whether the cancer may have spread further than lymph nodes in my neck. Feeling less able to do things at the moment definitely means more time for worrying and over analysing every pain and sensation in my body. Just wondered if anyone had tips for getting through this time or could tell me how long fatigue lasted in their experience? Desperate to get back to work and normal routine with family, but it all feels pretty far off at the moment.

  • Hi Rosie

    My own cancer was different to yours so I had different treatment. By replying to your post it will hopefully bring it to the attention of someone who has undergone RAI treatment and will be able to offer some more specific advice. Sometimes it can just take a few days for someone who has had your specific treatment/cancer to see it and offer support. 

    I do understand how it can feel when you are worrying about whether any cancer has spread and I also remember being ultra aware of any sensations in my body and analysing every little ache and pain. Fatigue can be common with many cancer treatments and I know for me it persisted for some time. 

    I know that it is hard to rest and recover after treatment and that you just want things to get back to a bit of normality with work and family. Why not give the Support Line a call and talk things through with one of the nurses. It may help to share your feelings a bit. They are there from 8am-8pm daily. 

    I wish you well with your continued recovery and if there is anything else you need while waiting for a response, please do ask. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm