Hi,
I should introduce myself as a thyroid cancer patient who had a hemi-thyroidectomy last year. My voice was perfect after surgery and also for a couple of months after. The subtype is uncertain because the surgeon left his role and pathologist’s suggestion from FNA was not followed up but possibly follicular-papillary and so DSV and hurtle cell not ruled out
My voice started to change around early summer last year (about 10 weeks post op) and I was told in a round about manner that it was nothing all the way to December.
In January I had a private ultrasound scan to check my neck and it showed a new nodule on my thyroid cartilage not seen before (1cm). I was referred on NHS urgent referral path for a biopsy. When I arrived for the biopsy it was decided that more information was needed beforehand and so deferred. I was then downgraded and almost automatically discharged. Still having a lot of trouble with my voice: my husband can barely hear me and occasionally out and about other people also struggle to hear.
I want to ask at what point will NHS think of doing biopsy if 1cm isn’t big enough? Also if it’s ultimately thyroid cancer spread to my voicebox are there any treatment options? I don’t want voicebox surgery….
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
