Hi there,
I have had a total thyroidectomy due to a cancer diagnosis. I'm wondering what the risk of reoccurrence could be now that I don't have a thyroid?
Do I really need to go through RAI? I'm worried about secondary cancers and it doing more damage than good.
Thoughts?
To be honest, I think all we can do is follow the advice of our expert medical team.
I had a TT and neck dissection in February 22, RAI in May 22.
Then a scan in November 22 revealed more cancer so I had another, larger, dose of RAI in January 23. I didn’t want more surgery.
I have/had a rare aggressive version of papillary thyroid cancer known as Tall Cell. My recent thyroglobulin is good and I’ve an ultrasound on Wednesday. If my team said I needed more RAI I wouldn’t hesitate.
My husband died of a rare bowel cancer a few months ago. He had a tough 5 year journey and his medical team were brilliant. I learned how expert they are and trusted them.
I think it's totally understandable that you're concerned about the RAI, I felt the same when I was told that I needed it too after my completion thyroidectomy for thyroid cancer in August 2023. I had my RAI in the autumn.
I felt very apprehensive about the treatment itself and its after effects. I know from my own research and from thoroughly quizzing my cancer team that it is a well established and researched treatment.
Your health's in your hands of course but my advice would be to listen to your team and get as much reassurance as you can from them about side effects etc, you can also ask us on here as well of course. Good luck.
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