Delays with RAI - thyroid cancer spread

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Hi,

I wondered if anyone else has experienced delays in RAI treatment?  

I have Oncocytic & Papillary Thyroid cancer, I had my surgeries quickly the completion surgery In August and was told 4-6 weeks after for RAI, it was then delayed due to staffing issues and I have had it booked in for February so 5 months. However this has now had to be delayed as the cancer has spread to my lymph nodes whilst awaiting RAI. I now have to have a neck dissection to have them removed on one side and then again wait for RAI. 

I have been positive throughout the process up to now, this has really set me back. Has anyone else been through this? 

Thanks

  • Hi, 

    I had my appointment after my thyroidectomy yesterday and they had already removed lymph nodes down to my chest due to the spread. They told me it was up to a 12 week wait for radioactive iodine at the Christie hospital in Manchester. 

  • Hi  thank you for your response. I hope you’re healing well. I’m have my third surgery this week and they have said March for RAI at Leeds. Fingers crossed we’re both in soon!