Conflicting medical opinions (thy3f)

Hi KaspianSce 

Sorry that nobody got back to you sooner, cannot say I have any experience of thyroid cancer as my wife's cancer is very different.

I have however been through examples of doctors trying to find answers when things are not quite so clear cut as we might hope and also different specialists passing us from one to another - it is really quite worrying.

Fingers crossed you get to talk to the surgeon before too much longer but then you finally get an answer.

<<hugs>>

Steve

Hi src60,

Thanks for your reply, it definitely sounds like you can relate to that feeling of being passed around. I think I've gone from endocrinology to another endocrinologist and hopefully to an ENT surgeon. The whole thing has become overwhelming and I don't want to pay too much attention to being told I probably don't need surgery in case I do need to.

Thanks, I might ring my late effects team in a few weeks if I haven't heard from the surgeon.

Hey,

I had two FNA's one was THY3A and the second came back THY3F, the second was done while waiting for an appointment with the surgeon and as I had been diagnosed with Graves disease before hand we opted for full Thyroidectomy otherwise he would have done half as there was suspicious features... After the removal it came back as Follicular Variant of Papillary thyroid cancer.

Before being referred to surgeon there was 3 MDT meetings about me.

Hi TrinityTrace,

Thanks for your reply, I've just had the one FNA and was told it was a follicular neoplasm (thy3f) and they wanted to take out a capsule and blood vessels as they couldn't tell if it was cancer or not. I was comfortable with this approach but now there has been an MDT and I've been told I don't need surgery but I would like them to explain this decision to me.

I've emailed them today so will see if they reply, hope you are doing well post removal.

I am doing ok thanks, a few side affects of my high dose Levothyroxine but about to have risk stratification done so hoping that comes back low risk so they can reduce my medication more!

175/150 mg alternating dose was just 175 and have loads side affects, diarrhea, weight gain, palpitations, fatigue, low mood, insomnia!

Grrrr lol 

Hopefully they answer your email quickly and explain their decision!

Let us know x