Active thyroid eye disease (TED) about to have RAI

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Hi, has anyone done their radioactive iodine treatment with an ongoing active moderate thyroid eye disease? I am about to have my RAI tomorrow and was just wondering.

If anyone had the same experience going through RAI with this TED, how was your eye afterwards?

Is anyone on the same boat, or have experienced undergoing surgery for TED after steroid infusions did not become effective?

  • Hi  

    Sorry nobody got back to you earlier, hope things go ok today. I have no experience in this area as my wife's form of cancer is very different though feel for you will the allergic reactions as that is something my wife definitely has experienced. 

    Hope somebody with more direct experience gets back to you soon, hopefully in replying I push your post back to the top of the list.

    <<hugs>>

    Steve 

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