Hello
I am currently having treatment for womb cancer (just finished 6 rounds of chemo and will shortly starting 25 sessions of external radiotherapy). But I have a completely separate referral going on that started back in Feb after having a lingering sore throat at the time and concerns with my Thyroid being very slightly swollen. After a neck scan was done two Thyroid nodules were found with one being slightly suspicious looking. The first biopsy of it was not conclusive either way but since the two biopsies done since have been classed as benign. But the Consultant said 3 weeks ago he wanted to send the last test slides to colleagues in the MDT team for them to review so to check that they are in agreement that I can be fully discharged. Today I had a call to see the Consultant again next week and now worried sick. He had said to me as far as he was concerned I was discharged and not worry about it and that 90% of the time the others are in agreement with any benign conclusion. When I asked if he was getting it double-checked because of my current womb cancer situ he said no. My cancer is currently stage 3 (one lymph node out 8 removed during hysterectomy found to be cancerous) and grade 2. Because I've been concentrating on my gynie situ I'm not so up on Thyroid knowledge so would appreciate some advice. I am right in thinking that some times it's decided to remove a nodule or the whole Thyroid if they are not 100% sure a nodule is definitely benign? I'm not getting any symptoms and the sore throat had for about 5 months was thought in the end to be down to me scratching my throat while eating and was just taking ages to heal. Appreciate any advice from anyone who's had a similar situation and whether just the nodule was removed or the whole Thyroid. I do also have to be prepared that they may come back and say they think it's cancerous but I'm trying to stay positive.
Many thanks
Hi Ms Viva
I'm sorry to read that you have the possibility of thyroid cancer to contend with on top of your womb cancer diagnosis.
I can't help with your questions but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hello MsViva
I am sorry to hear that you are currently undergoing treatment for womb cancer. My womb cancer was in 2022 and I also had LVSI and needed chemotherapy and radiotherapy. I hope that the chemotherapy has gone ok and that you have not had too many side effects from it. I wish you the best for your radiotherapy and hope it all goes well.
I can understand your worries about the thyroid nodule and that you have been concerned as to whether it is connected to the womb cancer. Through discussions with my oncologist in the past I was told that if there is any spread or recurrence then it is most likely to be to locally (top of the vagina) or to the pelvic lymph nodes to begin with. Although it is possible that it can go further afield at some point I would personally feel reassured that the consultant does think that this is a separate issue and it is not connected to your womb cancer.
It sounds like the consultant is being thorough by sending the slides to the MDT to be reviewed after the 3 biopsies and that he is double checking before discharging you. With having the sore throat I wonder whether the delayed healing has anything to do with the chemo.
It is good that you do not have to wait too long to see the consultant and I can understand your worries about possible thyroid cancer but it may well be that it has come back as benign again and that they just want to talk you through the next steps. This may be some surgery to remove the nodule or it may be that they routinely monitor you. There may also be some sort of medication or other treatment that they want to talk to you about.
This link gives a bit more info and may help.
Thyroid Nodules and Swellings (btf-thyroid.org)
I wounder if it would be helpful for you to give the Support Line a call and speak to one of the nurses. You could ask about the possibility of surgery to the nodule? The number is below and they are lovely on there. Rather than worry, give them a call.
Jane
Am glad it helped and do please give them a call. You can also speak to one of the nurses via online chat if you prefer.
I remember the fatigue from chemo and for me it did persist through the radiotherapy. But I did have low haemoglobin and some other blood levels were out and they gave me a blood transfusion in the end that made a difference. I think also the travelling to the hospital each day didn't help.
Hair loss is tough. I used the cooling cap and kept up with it as my hair was thinning but I did manage to keep a fair bit. My scalp did get a bit itchy/sore after each chemo but settled fairly quickly. A year later my hair is pretty much what it was but I would say it wasn't until after the radiotherapy ended that it really started to thicken up.
Good Luck
