So I’ve had a really bad start. Took me from May to September to convince my GP to take me seriously as he said my blood tests were fine and he could not feel any lumps. Started to make me feel like I was wasting his time. Eventually I self referred to a private hospital- got an MRI which found the nodules. So with this info I went back to my GP who said he would put me on the 2 week ENT urgent referral scheme with the NHS. It took 6 weeks before i was actually seen and they did an ultrasound of my neck. The technician who did it told me that my GP would have the result by the time I got to the car park.
A week later I had heard nothing so I logged into my Doctors website and found the result. U5 nodules - urgent - red status - immediate action required. So rather shaken about this and upset that I had to find out myself I made an appointment to see my GP. I asked why nobody had called - emailed or sent a letter and he said - well you saw it online didn’t you. Never got a notification.
So back for a biopsy to the same hospital (Peterborough). Again a wait and nothing heard. So by this time I had a review with my private ENT consultant. He logged into my NHS test results and said - you have Papillary Thyroid Cancer.
Again nothing from the hospital. I only had my review with them yesterday and got the impression that they would not have had a problem if the private doctor had not told me the result as they normally say 6 weeks. Seems like it’s ok to be slow as long as nobody finds out you have been delaying.
This maybe ok for an in growing toenail but not cancer.
So moving on - I’ve had the left side of my Thyroid removed privately and it looks like I may need to right side removed. I am worried that so many other symptoms have appeared from diarrhoea, headaches, ear and eye pain to ache in my groin. Explained all these symptoms to the NHS ENT Dr but got the impression that it’s not his area and I need to go back to the GP. Do not pass GO - do not collect £200 and of course join the end of the month queue again.
i just can’t believe things are so bad.
