Waiting for diagnosis.

Hi Dave

I'm having exactly the same experience as you and feel that I'm being left/ignore.  I'm now going ahead with a wisdom tooth extraction after a week of antibiotics which haven't worked, to eliminate this as the cause if the ongoing pain like yours. I'm really not getting anywhere because in MAY I pushed for an ultrasound on my neck and the oncologist contacted me urgently saying they had found a new 'something' on my thyroid bed and wanted to do another thorough ultrasound. This was done and 2 suspicious looking lymph nodes in the area of pain were checked with FNA and result no cancer. The problem is they aren't now testing this new thing on my thyroid bed!..saying it could be a nodule, or something surgical material left in 3.5 years ago...or...they don't know... I'm feeling so let down and worried and suffering with this pain

Sorry Dave....I didn't mention that I have had thyroid cancer and had a full thyroidectomy.  Maybe from my confusion her you can see that I am really stressed with my situation now. Reading your post again and considering my experience before the initial diagnosis, maybe we both have tooth problems... I do hope so  xx

Thank you for the time to reply. I have not had a formal diagnosis but I can't help wonder if it is a Thyroid cancer (of which there are 4 or 5 types) if it could effect the jaw and ears. 

Many people say you should not speculate but I can't help wondering if I have one problem (Thyroid) or more than one problem (Teeth). The pain under my jaw was like a cramping pain for several weeks but now it seems to have gone to the back of my mouth around the wisdom teeth. Also my ears feel full or like there has been an air pressure change.

My dentist took 2 x-rays but nothing has changed recently.

I just don't know what to do. Have the teeth removed or wait and see what the biopsy says.

Were you told what type of cancer you had ?

Dave

Yes Dave...I had Papillary Carcinoma but the tall cell variant with is apparently rare and aggressive but I had no symptoms/signs only a Dr who luckily pushed me to get a small lump checked after she felt it when I went with a sore throat from a summer cold...she pressed my neck a little bit too hard and the lump moved and caused me to lose my voice.  This one woman saved my life because an almost 4cm cancer was found!

The MRI has shown a 2.8cm nodule but that is least of my symptoms. To be honest with you it's simply a matter of which type of cancer I have rather than if. My symptoms have progressed relatively slowly over the last 4 months. I feel calm about the potential outcome - BUT I am very angry about the response of lack of from my GP. I documented all my symptoms, provided photo's of my neck changes over the last 12 months and all he said was that my blood tests were ok. I've spent a considerable amount of money getting the required tests privately and finally now I have actual evidence of the Thyroid issue the GP is starting to pay attention.

I have irritation of my airways in my chest, pain in my neck, bottom teeth ears and it is getting slow worse all the time. I am eating quite a lot but my weight it slowly decreasing.

The NHS is just awful at the moment.

Dave

I do agree but what can we do.  I totally empathise with you because my cancer was actually diagnosed whilst I was abroad for a short time...see my previous post...and I was the one saying to them (abroad) that everything should be fine, my UK  Drs aren't worried

I hope you don’t mind me asking but if you had a biopsy of your thyroid - how long did it take for the results to come back ?

It was about 5 weeks actually...everyone involved kept saying they were sure it wasn't cancer...even the colour of what they took with the needle they said was a good colour?!

When you consider there are some variants which are quite aggressive and prompt treatment is imperative - 5 weeks seems - life threatening.... 

I'm obviously being impatient.

Thanks for the quick response.