Solid Trabecular Follicular Cancer

Hi LJWM 

I'm sorry to hear your report is causing you worry. I remember going through post op GP reports and frightening myself as Dr Google basically said I had no hope. A lot of people say that Google is out of date and that by just looking at one aspect it doesn't show the whole picture. 

I would ring your CNS and ask her to explain it to you. The other option is to ring Macmillan helplines or email your question to a nurse or expert. This is the link to contact https://www.macmillan.org.uk/about-us/contact-us

Hope you get sorted,

A x

Thanks, I've contact Macmillian nurses and they couldn't find anything on solid trabecular follicular thyroid cancer either or expand on my report.  I'm private as NHS failed, Dr said I just had menopause and wouldn't listen to me. I don't see my consultant till Nov now and can't just have appointments to explain or I'll have to pay £300

I am really sorry to hear that your GP wasn’t helpful and you felt you needed to go private to get help.  I wonder if now that you have your diagnosis you should be able to transfer to NHS care?  Cancer treatment is a real priority in the NHS and certainly my husband and I are both having excellent care.  
My understanding has always been that private health is to speed things up rather than anything else. As a cancer patient we will need ongoing support and being able to contact your team is vital.  I would suggest speaking to your consultant’s secretary about this as they may be able to advise you.  Practically all consultants who work privately are also working in the NHS. 
Take care x 

Thanks, I did wonder about going to the NHS but will do this after I have my RAI followup scan in November so if anything comes up I have have any treatment quickly and privately. My Drs surgery are useless and have been changing my medication which they shouldn't have so I have no faith in them and can't change surgeries which makes me nervous to go back to the NHS.

I worked for a while on a cancer ward and it was clear to me that the treatment people received was the same.  The consultants were the same, everything,

 I even remember a couple of them discussing a colleague ( who was doing private work) rather disparagingly, saying that it was a con and that the private patients would certainly not get better treatment.,

I really would encourage you to return to the NHS.  Certainly your GP should not mess with your medication and needs to be told so.  The hospital are in charge. 

The only reason I'm staying private is due to not knowing if I need another op in November and the fact I get up to 30 mins to discuss report findings compared to 10 mins on the NHS. I will be going back to NHS, as I said earlier, after my scan in Nov. Thank you

I've been on this forum for 12 years and I've never come across that term. 
Do you have any idea what difference it would make if you DID have this HTT version?
My guess is - like all the other subvariants that people get - that the treatment is likely to be pretty much identical regardless of any additional letters. And on that base, unless you know that knowing would make a significant difference, pop the report in a drawer and ignore it.
We often get people here asking us to interpret really complicated stuff that was on their ultrasound report. I can't and if I could I still wouldn't do that - all that matters is that each report gets you to the next stage of any treatment. Insanity lies in over analysing what's been written when 99 times out of a hundred, there treatment is going to be exactly the same.

I write as somebody with Follicular Hurthle Cell Carcinoma who knows that the extra letters and descriptors didn't change a thing about what treatment I got.

Thanks. As I said, it doesn't impact on my treatment but I'm one of those people that likes to know every detail. While it doesn't impact anything,  it would help me mentally , especially as I've not heard it mentioned before and come across hundreds of other people's reports all sounding the same, except mine. X