Hi all,
New here as only diagnosed 4 weeks ago. Still trying to get my head around it all to be honest. I was told initially that the biopsies done on my thyroid were suspicious but that ones done on lumps on my lymph nodes were cancer. They have diagnosed it as highly likely thyroid cancer which has spread into the lymph but further tests have all come back and doctors are unable to narrow it down to a specific type (papillary, follicular etc.) as the cells taken were all undifferentiated and not clear. I guess my question is has anyone heard or experienced anything like this? I have been advised I will be going for a total thyroidectomy with a lateral neck dissection to get rid of the lymph issues too within the month but I'm still struggling to process it all as not sure exactly what I'm dealing with.
It does take a while to get your head round @Hatter and I am so sorry you are having to go through this. I am 6 months down the line post op and have had Thyroidectomy with central and rh side neck dissection, followed by RAI just before Christmas (Op was end July 22). I am still learning as there is a lot to take in and different people have different experiences. I still don't know whether I have Tall Cell variant or not, I was told I have a 60% of having it, but not confirmed. I am unsure of the difference between differentiated and undifferentiated and what it means exactly but hopefully someone else will reply to you who has experience of this. I can say that mine is Papillary Cancer and I didn't know that until my follow up appointment after the operation as they weren't sure either, although I was told that it would more than likely either be Papillary or Follicular. Tall Cell variant was only mentioned when I had my first Oncology appointment and am waiting for another shortly post my RAI treatment. The operation was fine, I only needed paracetamol for a few days to deal with a headache and sore throat from the anaesthetic tube. I felt fine in myself and just had to avoid lifting anything heavy for a while but they will no doubt tell you all about this when you have your operation. I was eating and drinking more or less straight away. So although the thought of the operation is quite scary it wasn't so bad after all.
I found once that I got something in writing it was easier to look up myself and get my head round it. You don't always pick up on everything they say when you are in the room, well I don't I know I missed a few things, either that or they didn't tell me.
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