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Hi new to this I have been unwell since February 2022 finally got diagnoised in august 2022 with pallipary carcinoma had a PT to then find out it had spread to my lymph nodes so went for a second surgery in December 2022 for full thyroidoctomy and neck dissection… I’m now awaiting to get RAI have no idea what does or when just told would be in next 6-12weeks.. but I’m very concerned as I’m really unwel I have constant pins and needles in arms and legs but all blood work is fine like my calcium tsh b12 all the things that you would think would cause this I also have extremely painful elbow joints and knees the ache sooo bad aswel as this I feel sick constantly and few occasions this week I’ve nearly fainted went all dizzy nausea and hot and sweaty so had to sit down till it past… I’ve been to GP but they have said until oncologist gets in touch with them they don’t want to do anything. I’m really concerned that this has spread to my bones has anyone else had this thank you xx

Petal66 over 2 years ago

Sorry to hear you feel so unwell @Lauren69. Have you been back to your surgeon for a follow up yet, just thinking you should see someone and get checked over. Are you having regular blood checks for instance to check your Calcium levels. Mine was very low after my TT and neck dissection and I was on Calcium for 2/3 months. I then had my Vit D increased and Calcium dropped when my levels were ok. I know you said your levels were ok but how often have they been checked since your op, because they can alter. I have had an achy leg since my op and just one leg, it is only now and again and not a constant pain, I usually wake up with it and once or twice it has ached during the day, but not all the time. I was ages before I got to see my Oncologist, op was 26 July 22, and my Oncologist appointment was Nov. Just had RAI just before Christmas, so I waited over 5 months for mine.

Lauren69 over 2 years ago in reply to Petal66

Hya i have been getting bloods every two weeks… I have had a message off docters saying my blood pressure is extremely low so to go back in tomorrow xx

Petal66 over 2 years ago in reply to Lauren69

At least you know what you are dealing with, keep in touch so we know how you are doing @Lauren69.

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