Getting to the correct levothyroxine dose

Hi Langdaleman . I just dropped by and noticed you've not yet had a reply, I have a different type of cancer so I'm sorry I can't help. Whilst waiting for the members here to come along and answer it might be an idea to give the Macmillan support helpline a call on 0808 808 00 00 and speak to a nurse.

I've been on Levothyroxine for years following a sub-total thyroidectomy back in 2002 and my levels don't change so I hope you get an answer soon.

All the best, B xx

Hello

This is certainly not a standard response to reducing the dose. 

Have you been on the same brand of thyroxine throughout? Sometimes changing brands can mess with things.

Are you taking any other medication - including herbal supplements or vits and mins?  Lots of things can interfere.

Logic tends to make us think that a low TSH will make us burn up all the food we eat. The problem is that when TSH is too low, you can find it makes you constantly hungry.  I remember my oncologist (when I was suppressed) asking me if I found I could eat anything and not put on weight. I laughed in his face and asked which crazy 'expert' had told him that story.

If this continues to be a problem. see if your MDT will agree for you to see an endocrinologist. 

Hi Barbara.

Hi Barbara

Thanks for your reply. Same brand except when I have to take 25mcg. Also take lansoprazole and Vit D but I am quite disciplined about the time of day I take each med. I am to take only 75mcg at weekends and 100mcg on weekdays. i weigh 90kg so seems like quite a low dose. Think I will stay on reduced dose for the next 6 weeks, have my blood test but if things not heading in the right way will as you suggest seek out a chat with my endocrinologist. Thanks for your support.