Increasing thyroglobulin levels - what does it mean?

  • 2 replies
  • 25 subscribers
  • 1032 views

So, bit of background - diagnosed in May 2017 with papillary thyroid cancer, due to tumour in left side. Left side of thyroid removed June 2017 , then remaining thyroid removed along with 96 lymph nodes and left/central neck tissue Aug 2017. Radio-iodine in Nov 2017, all clear April 2018. On 100mg levothyroxine (which has been changed a lot of the past couple of years). 

Attended my usual check up two weeks ago (delayed by 12 months due to covid) and got a phonecall on Thursday (my birthday!) to say that my thyroglobulin levels have shown a steady increase over time so they want to do an ultrasound to see what’s going on.

I think she said they started as 0.6 in Dec 2017, and have steadily risen by 0.1/0.2 and it’s now 1.5. No idea what that means but I’m guessing it’s not good??

Thyroid nurse wouldn’t say much about what it could mean so I’m hoping someone may be able to help. I just want to be as prepared as possible for what it could be. I may be over thinking and unnecessarily panicking, but either way, any help/advice would be greatly appreciated x 

  • Hi

    It's natural to worry about what your results could possibly mean, we've all been there.

    I noticed that your post hadn't had any replies yet so replying to you will 'bump' your post back to the top of the discussion list where it might be picked up by someone with the right experience.

    While you're waiting to see if you get a reply you could post your question in the ask a nurse section of the online community and one of the specialist nurses will aim to respond within 3 working days. While they won't be able to tell you what this increase means specifically to you, they should be able to tell you what it might mean in general terms.  

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you so much for replying and bumping my post up! I’ll do that, ask a nurse, so thank you 

    Claire xx