Radioactive iodine anxiety

FormerMember
FormerMember
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I have been waiting for radioactive iodine treatment since December, it is now march at earliest, apparently due to a trademark issue?? 

1. I am looking at a 5 month wait at best, which seems concerning given my surgeon had been talking about 8 weeks after surgery.  So that's rather worrying. 

2. I have two very young children and I am feeling so nervous and anxious about leaving them. It's hard to organise the logistics - I need to fly my in laws over from another part of the UK to help my husband so he can keep working, and the hospital won't give an exact date. Plus so worried about being away from my children without knowing exactly how long for.  I've never been away from them longer than a night before. 

Hopefully someone else has been in this situation.. or anyone who has heard about treatment being delayed. 

  • Hi Annaacbella

    just to reassure you my RAi was delayed from March to July last year but they did say it would be ok to delay for a good few months without affecting anything. I would send an email to your Nuclear Doctor explaining the logistics of your childcare problems and ask for consideration being given to you for a potential date for your treatment.

    Depending on your dose of RAI given, you will be measured with a geiger counter a few times and when you are safe to go home they normally have a chart you can refer to regarding children and contact. Again maybe ask in your email what the recommendations are. I seem to remember it was a sliding scale of ages. I was in hospital for two nights and was ok to go home the 3rd evening once my levels had gone down. I used a separate bathroom for a week and slept alone.

    I hope you get your questions answered by your team.

    Best wishes

    Jan
  • Hi Annaacbella

    View tends to be that some delay is acceptable. I understand your concern and agree that explaining your childcare plans to the Nuclear Medicine Department would be a good idea. Rest assured Nuclear Medicine is tightly regulated and care will be taken to ensure you are safe to go home before you leave hospital. You will be given clear guidance on the steps you need to take to protect others before you go home. To flush the radioactivity from your system I was advised to drink as much as I could, shower twice daily and pee often, Good luck. You will soon be through this and into your recovery.

  • FormerMember
    FormerMember in reply to Langdaleman

    Hello, done worry about this . I was told that if I had been pregnant it would wait for 9 months ( I was 62 at time .......no way ) when it came up it was fine .  . Don’t get anxious please .

    ,

    f I had been 

  • FormerMember
    FormerMember

    Hi , I have PDTC and Papilliary Thyroid Cancer, i had my surgery in MArch 2020 and had my treatment delayed by 5 months due to Covid... I'm going to be brutally honest... ask for treatment somewhere else... I went to the Marsden to get mine done.  My local hospital couldnt work out how to do it safely but the Marsden didn't have those issues.  I've had 2 treatments since august last year, but due to the delay at my local hopsital my cancer had spread and I'm now incurable.  I'm in NO WAY suggesting this will happen with you, as I have a very aggresive form of Thyroid Cancer called Poorly Differentiated Thyroid Carcinoma... which spreads easily.  BUT... there are things the NHS can do... alos the MArsden moved to a new brand of RAI Tablet for my last treatment, so theres no issue there at all.  What I'm saying is you have to be forceful... I ended up taking out a complaint against the trust and they found in my favour and stated that mistakes had been made,

    Wishing you the best of luck with your treatment.

    Marc V