Hi everyone,
In February my 38 year old husband was diagnosed with stage 3 testicular cancer which had spread to his lungs, liver and lymph nodes. He took part in a chemo trial which really took it out of him. He did 4 cycles of BEP with only 1 weeks rest in between rather than 2 weeks. His tumour markers started at 1935, HCG 1025 and LDH 3000. After the 3rd round the the HCG and LDH had returned to normal but the AFP wasn’t quite. After the 4 cycles of BEP he then had 4 weekly Bleomycin bags. After the end of these his AFP had got to around 40 and then started to increase slowly again.
After the chemo he continued to have weekly blood tests and the AFP then started to drop to about 25. The doctor told us the chemo can continue to work for weeks after in your body which I was unaware of. The CT scan showed that he still had tumours on his lungs but couldn’t tell if it was active cancer or scar tissue.
5 weeks ago he had his right testicle removed and has developed fluid under the surgery site.
When he had his initial scan it also showed he had blood clots on both lungs so just another thing to add to the list!
We had our 3 monthly check up this week and the AFP level has now dropped to 15 so not far from normal and the CT scan backed up that the residual tumours are still shrinking but the blood clots are still the same size.
My husband ankles and calves swell loads and also go bright red. He also struggles breathing when doing any form of exercise including fast walking. Has anyone else had these side effects 3 months after chemo? If so how long did they last? Also has anyone has tumours that showed Jist to be scar tissue?
sorry for the long message!
