Hi,
Last year I had a LHS orchidectomy for a 3cm pure seminoma. Due to the early stage of detection, minimal invasion and the ongoing pandemic, I opted for surveillance only, with no adjuvant chemotherapy. I'm regretting that decision now...
A year later, a routine surveillance CT scan has revealed a single enlarged paraaortic lymph node (19mm). This is enough for my oncologist to believe it's cancer again and the treatment is 3x AUC10 Carboplatin, 3 weeks apart. I've been reassured that the chemo will have a 99% chance of success.
Strangely, I'm more worried about the chemo than I was the orchidectomy. I've heard Carboplatin side effects are less harsh than other drugs. This is some consolation. I'm worried about being unable to work for a few months as well. I need a medical certificate for work and I'm worried about long term effects like tinnitus potentially ending my career. I know that's probably unlikely though.
I was wondering how other people on here have gotten along with the above chemo treatment. I know everyone is different, but it'd be great to hear any tips or things to watch out for. I'm sure the oncology team will tell me everything I need to know, but that won't be for another couple of weeks.
This community has been a brilliant resource since my initial diagnosis last year. I felt like now is the time to contribute. I'll try to keep the updates coming. Mods please feel free to move this post if it's in the wrong place.
Thanks for reading.
Dean
How was you notified about the results of your CT scan? I only ask because I am under surveillance after surgery and after every routine test I usually get a letter saying everything is OK. But two weeks ago I had a CT and bloods done and not received the usual letter instead I have received an oncology appointment through for next week and it has me abit worried.
Thank you
Hi Jim,
I had settled in to the routine of having CT scans and bloods regularly, then an oncologist appointment every few months. I went to my first in person (rather than telephone) appointment since Covid-19 started and was told the results had just come in that morning and I needed chemo.
It may just be that for you it is just a return to face to face appointments, rather than Covid-19 necessitated telephone ones. I'd definitely expect you to see your oncologist 2 or 3 times a year for a routine review.
Hoping for a good outcome for you mate.
Dean
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